Vitamin D Deficiency

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Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 7/16/2008 9:45 AM (GMT -7)   
I just came back from an endocrinologist's office. I've been VERY tired and fatigued and sleepy most of the time. The Crohn's isn't supposed to be active, so I went to this doctor. He ran blood tests (I think they take less blood when you donate!) and I got the results today. He says my blood sugar goes low, so I need to eat a low carb diet so my body doesn't send too much insulin into my system and make my sugar go low. Not super easy to do since I'm supposed to watch how much fiber I get, and fatty foods make my insides cramp up. But the big thing he talked about was how my vitamin D levels are low. I'm fair skinned, use sunscreen when I go outside, and since I've been so tired I haven't been outside very much. Does anyone else have this problem? Do you know if it's partially because of Crohn's (maybe something isn't getting digested properly? He didn't say anything about my B vitamins being low.
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 7/16/2008 10:37 AM (GMT -7)   
Vitamin D has had lots of press lately. apparently, most people need more D. those with dark skin, living in the north, avoiding sun or using lots of suncreen all seem to need more. I don't know how it relates to crohns, but I do take a suppliment as does the rest of my family. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 7/16/2008 11:10 AM (GMT -7)   
I don't know how vit D relates to being tired. But my Endocrinologist has had me on Vitamin D by prescription for years so that I can absorb more calcium for my bones. I take 50,000 IU once a week, then when she ran my blood work this year my levels were still too low so I take an additional 2000 IU every day. I certainly don't feel any more energetic, but my bone density tests have gotten better every year. I'm sure it has to do with how fast food runs through my system. There simply isn't enough time to absorb the nutrients.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jul 2007
Total Posts : 456
   Posted 7/16/2008 12:07 PM (GMT -7)   
My Rheumy says she sees a lot of vitamin D deficiency.  She's got me on a prescription suppliment that I take twice daily.  It's especially easy for us to have problems, since fat malabsorption is so common in Crohnies.  I've seen references to vitamin D's benefits in the treatment of inflammatory and autoimmune diseases, but I don't remember where.  If I find it I'll post a link.  Vitamin D is right up there with calcium in causing or preventing bone problems like osteoporosis.  It's probably something we should all monitor, considering how often we take prednisone.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 7/16/2008 9:02 PM (GMT -7)   
for vitamin D deficiency, take cod liver oil. i know it sounds gross, but it aint. and it doesnt taste or feel gross either. you can get it flavored so it is fine. get the liquid, not the gel caps, taking 1-3 teaspoons per day. i have done this for over a year. the brands i recommend are garden of life and carlson labs. remember, cod liver oil, not fish oil. big difference. fish oil is second rate. you get vitamin A and omega 3's with cod liver oil.

most people are very deficient in vitamin D as our lifestyles have us spending virtually all of our time inside. bad idea. check out as he discusses a lot about vitamin D and its benefits. the best place to get it is from the sun.

as for a low carb diet, i believe he means low sugar/grain. on a low carb diet you can still get all the carbs you want from veggies as those dont spike your blood sugar. it is the carbs from grains and fruit that do that. they are quickly metabolized into sugars by your body which forces the pancreas to produce insulin to counteract the spike in blood sugar. insulin turns the sugars into fat and thus you get fat if you dont use these calories being stored as fat. so by reducing your intake of grain based foods, foods high in sugar (especially refined sugar) and not eating a ton of fruit, you should be fine. this is how i eat and i have been doing so for over a year. works wonders for me and has greatly minimized my symptoms.

most crohnnies dont tolerate rich or fatty foods, so you arent unique here. you're one of us. most of those foods arent healthy for you any way so look at as a forced healthy diet instead of a curse.

from things i've read and naturopathic docs i've talked to, IBS is more diet induced than actual disease. check out the maker's diet or the scd. there is a very good chance, imho, that this could help both you and your son who suffers from IBS. something to think about....
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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