How do I have Crohns?

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Regular Member

Date Joined Jun 2004
Total Posts : 226
   Posted 7/20/2008 5:33 PM (GMT -7)   
Hey guys havent been around much lately but ive been dying to start this topic...I want to know if I even have crohns or maybe a wierd case. I hear about all this running to the bathroom and I coul never eat those foods with throwing up a college kid and I
Smoke Cigs

Drink beer and liqor

Eat pizza/cheessteaks/seeds fudge anything I want

I drink tons of milk and stuff but like how can I do these things have crohns and have no effects?

IM a lilttle tipsy right now so I have another question

Since I got crohns when I was 15 (19 now) Did I get it at the worst time? Growing up pre crohns I was the man. PLayed all sports and was the star on all my teams. I was good looking (not being cocky) and every girl was attrcted to me. It seems like crohns deleyd my devleopment as I now look like im 16 and didnt get "older" like the rest of my class. But it didnt delay my sexual development ... Could a really stressful sitaution around the age of 15 made me get this?\

Sorry guys ive been dirnking a little but still sometimes I get mad at all this crohns crap. Ive had 3 bowel ressections and dont want to ever have a bag. ....end of rant

I edited out your reference to drug use, as discussion of illegal activity is forbidden under the forum rules. - Ivy.
I also edited just as Ivy was doing for appropriate content (things acceptable to say in a family friendly forum.

Post Edited By Moderator (MMMNAVY) : 7/20/2008 7:56:23 PM (GMT-6)

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/20/2008 6:00 PM (GMT -7)   
like some things in life, youth is a play now, pay later situation....
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 7/20/2008 10:04:53 PM (GMT-6)

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 7/20/2008 7:43 PM (GMT -7)   
I'd call 3 bowel surgeries a possible effect. But I also agree with MMMNAVY, sometimes what we do now can bite us later on!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 2.5 mg *eek*, Asacol, Questran, Toprol XL (for high blood pressure).

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 7/20/2008 9:54 PM (GMT -7)   

You don't want to make your symptoms worse! PLEASE take care of yourself! I know it's hard, but think of the possible outcome if you don't take care of yourself. There is nothing wrong with having a "bag," but if you don't take care of yourself you'll prob blame yourself if you do end up with one. If, in the future, you DO end up with a "bag" at least you'll know that you did everything you could to try and stay healthy. You don't want to look back and say, "If only I didn't do this" or "I wish I would have done that."

Please take care of yourself! I know it sucks, but your body will thank you for it in the future! Trust me, there are times I want to drink with my buddies too, but I think of the outcome and to me it just isn't worth it. Seriously.

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 7/20/2008 10:30 PM (GMT -7)   
I think you will find , younger bodies or better healers than older ones and that the knowledge of age comes with a price.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/21/2008 9:57 AM (GMT -7)   
I was diagnosed with Crohns when I was 18 years old. I had two pretty big flares then went on to enjoy a 20 year remission without medications. I ate what I wanted and went on with my life. Got married, had kids etc etc. Would I do that again? NO freaking way!! I ended my remission by having a emergency resection and have a foot of intestine removed and another one 3 years later. If I would have taken the Pentasa as my doc wanted and took better care of myself this might not have happened. Even though you go on with your life, Crohns is ALWAYS in there ticking away and doing its damage. I figure we are going to hear from you again sometime soon and you are going to be very ill. I didn't have my first resection until I had had Crohns for almost 27 years. You have already had two and you are in the early years with this disease. I think if you don't start taking care of yourself now you are going to pay a hefty price later on. And a bag could very well be in your future. JMHO
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jun 2004
Total Posts : 226
   Posted 7/21/2008 3:01 PM (GMT -7)   
Ya sorry guys didnt mean to come off like that. WOW. Anyway yeah im going to try to take a little better care nothing to crazy what happens happens

Veteran Member

Date Joined May 2007
Total Posts : 589
   Posted 7/21/2008 4:07 PM (GMT -7)   
I got Crohn's at 16. I kept growing, albeit much more slowly... but by then I was already 6'. I've added a few inches since then.

Nothing is without its consequences. For a long time after I got Crohn's, I kept drinking Mtn. Dew. After a couple years of non-remission, I decided to quit drinking caffeine. It made a huge difference, though it obviously didn't give me the remission I was after. For me, I was kinda lucky in that I was never the type to drink or smoke or chew, so Crohn's didn't detract at all from my social life in those regards. That being said, alcohol is probably not something you should consume- it has a tendency to screw around with everything in your body, and to interact in strange ways with drugs you might be taking for your Crohn's. Same goes for tobacco. I've heard it can help with the pain, but the whole inhaling smoke thing never seemed like a good idea to me. People caught in fires die of smoke inhalation long before they actually catch fire.

Honestly, if your friends give you crap about not wanting to smoke/drink/whatever, just tell them to shove it (Or get more creative, I won't post what I'd say here, as I don't think its appropriate). If they persist, it might be time for new friends. My friends have never pressured me to do any of that because they know that it would be much worse for my health than it would for a normal person. It also helps that I'm as stubborn as a mule. We don't let that stop us from having fun, though. After all, someone has to be the designated driver. Might as well be me. Plus, if they get really hammered, its nice to be sober so you can remember it and make fun of them later for the stupid stuff they did.

Post Edited By Moderator (FamilyGuy) : 7/21/2008 6:10:24 PM (GMT-6)

Regular Member

Date Joined Jun 2005
Total Posts : 72
   Posted 7/21/2008 9:12 PM (GMT -7)   

you're not alone. I'm an 18 year old girl and I drink and eat anything and everything and go to dance parties and keep awful hours and drink tons of coffee and all that. I effectively live as an average kid-my-age, but with a well stocked pill case in my purse and occasional bouts of pain.

I smoke occasionally, but that's the one thing that bothers me. So I guess I shouldn't, but I really love the feeling and I'm okay in moderation. But when I have a couple smokes I have to lie in bed for about an hour after I wake up the next morning because I can feel it in my guts.

I mean no disrespect by this, because this website's been an amazing tool for me, but sometimes I wonder that it doesn't give a sort-of skewed view of Crohn's. Because you don't exactly come on the website when you're feeling well and normal, right? Mostly you see newly diagnosed people, people with specific concerns and questions, and the long-time Crohnies who've been to hell and back. Not many light-to-middle-of-the-road cases; it's hard to know what's really up.

As for the other questions I'm not really sure what you're asking. I was diagnosed like a month before my 15th birthday, and yeah it sucked. But hey, at least we got most of our childhoods, right?

Regular Member

Date Joined Oct 2005
Total Posts : 168
   Posted 7/21/2008 9:26 PM (GMT -7)   
I understand what you're experiencing. I'm pretty young too, 24. Knew I had a problem when I was 16, but didn't feel bad after the first bout. Went 5 years feeling great, doing whatever I wanted to do, with no meds. 3 years ago I hit hell, had 4 bowel resections in 6 weeks. I've had blood clots, collapsed lungs, fistulas, horrible drug reactions, and a million other things since then. And it was all because I didn't know how to take care of myself as a teenager and new adult. And I'm paying for it now, dearly. I can't work, my husband had to quit college, and I practically live at the doctor's office. And I don't even really have it that bad compared to a lot of people here. It's so easy to forget how debilitating the disease can be when you feel good. But those kinds of living habits can catch up with you so quickly when your body decides to turn on you. I hope you continue feeling good, but you can still feel good while living cautiously.
diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN

Regular Member

Date Joined Jul 2008
Total Posts : 128
   Posted 7/22/2008 5:41 AM (GMT -7)   
im so jealous of you guys, and im sorry i have to say that but thats the life i want. im 18 as well and want more than anything to go and party with my friends or eat candy whenever, popcorn at the movies, coffee when i feel like it... but i seriously can't. im going to college in the fall and im so nervous because i can hardly function with day to day activities and i cant remember the last time i was able to spend the night at a friends house. granted ive had severe crohns for almost 5 years it just makes me sad that i try so hard to eat the right things and lead a healthy lifestyle and some people don't even need to try and can do whatever they want and have mild side effects. same as someone previous said, be careful because ive seen little spans of "normal" life but there is much worse in store if you ever happen to have a really severe flare up. try and lead a healthy lifestyle even if you arent in a severe flare, it's going to be better for you in the long run, even if you didnt have crohns
18 year old female- diagnosed with severe crohn's in December of 2004, only one mild remission since being diagnosed
have been treated with prednisone, 6mp, and remicade. now trying humira

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 7/22/2008 4:14 PM (GMT -7)   
It may not seem like it's affecting you now, but those actions will inevitably in the worst possible way.
One of my boyfriend's coworkers was diagnosed with Crohn's yet ate anything he wanted. He felt fine but DID end up with a colostomy bag. He was told that could have been avoided if he had taken better care of himself.
I'm coming on 20(diagnosed officially with Crohn's this past May), and I don't want a bag either. That's why I'm trying my best to stay away from those foods even if I do love them(cheesecake, pizza, takeout Chinese, smirnoff black, etc.). They taste wonderful, but they're not worth the outcome.
I hope you can work something out in the future where you can be satiated as far as food and sex are concerned without harming yourself.
It's difficult but imagine the life you would be giving away in the name of some cigarettes and greasy slices of pizza. Hardly worth it. I should hope so anyway.

Regular Member

Date Joined Jan 2008
Total Posts : 28
   Posted 7/22/2008 6:52 PM (GMT -7)   
Whats the big deal about the eating whatever you want thing? Is it not good to be able to eat what you want? I see everyone is saying that you will pay for it in the long run. I do eat what I want usually when I want it, but Im starting to wonder if its a good thing or not?

Regular Member

Date Joined Oct 2006
Total Posts : 367
   Posted 7/22/2008 7:14 PM (GMT -7)   
To all the college-age folks--I know how hard it is to deal with everything going on in your lives right now. I had the best college experience that included all the things you are talking about. But I beleive it is becuase of my smoking (and a few other things) that my CD presented when it did.

I'm not going to tell you to eat super healthy or to stop drinking (although I will tell you to stop smoking, it's proven you are much more likely to need surgery if you are a smoker). I still don't eat exactly like I should and I still have a few drinks (mainly on the weekends). But I do try to make the healthier choice when it comes to meals. I average 8 hours of sleep at night. I take my meds. Etc.

AND I am one of the lucky ones who has remained in the mild to moderate range. And yes, I do think part of staying in that range is due to the fact that I was diagnosed pretty soon after onset of symptoms, found a good doctor, and take care of myself. But I think part of my being able to get away with eating/drinking some of that stuff is becasue I am mild/moderate. There are many people on this forum who are not as lucky as me and no matter how well they take care of themselves, their disease is worse.

So, take heart my young friends, you can still enjoy your college/young adult lives while taking better care of yourselves than you are right now.
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