I thought after 6 months of no gluten I should report. the first paragraph will be my history, so long-timers can skip it they like. March '06 I was suddenly very ill with a fever, fatigue, and gut pain mostly around my belly button. I had a sbft, c-scope, MRI and Ctscan, and all showed crohns. scope showed 15 cm of ulcers, lots of inflammation, etc. I never had D, but lots of C. I was put on 80 mg pred for a couple months, and inflammation went away, never to be seen again, as did ulcerations. however, pain (to the point of me being on pain meds around the clock) and C never went away. I tried remicade and humira and they did nothing. My GI suspected I had adhesions from previous surgeries and I had two surgeries in '06 to cut them. that helped lesson the pain some, but it was still bad. I hurt a lot every time I breathed and the worst thing was I had no energy, weighed nothing, and napped all the time. finally, they wanted me to see a surgeon again, so I followed the advice of all my friends and went to a naturopath on Dec '07.
I had been tested early on for celiac, and it came back negative; however, the tests the naturopath did showed a high gluten intolerance. I stopped gluten completely on Jan 12th and my recovery has been a miracle. the first three weeks showed no change, and then a light turned on and I felt great. pain is very light (no need for meds, ever) and I can eat all the fiber I couldn't eat when I was sick. I still need metamucil and glycolax for C, but I feel great. tons of energy, gained weight, look good, and have found lots that I can eat.
I have no idea if I ever had crohns, but I certainly had the positive diagnosis. whatever happened, i am so grateful to have found a diet that has given me my health back.
I still love being here, adding my two cents, and checking in with you all. big hug, YP
49 y/o woman. Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.