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Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 7/24/2008 8:51 AM (GMT -7)   
I was just diagnosed with Crohns in May.  I am having a very hard time with this.  I am 34 and the mother of 4.  My husband works a lot of hours and I work part time.  I am having a hard time trying to hold my life together.  I was in the hospital with a flare up and that is when I was diagnosed.  I was on prednisone and antibiotics for 6 weeks and still don't have much relieve.  I tried the iruman, but it made me feel worse with all the side effects than I felt before.  My GI doctor is sending me to a specialist in my area that deals stricktly with people with Crohns, but I can't get in for another month and a half.  I don't know that I can deal with all of this until then.  I have a wonderful network of support from family and friends, but it breaks my heart when I don't feel well enough to take care of my kids.  The other day I said I didn't feel good and my 11 year old said that I never feel good anymore.  I don't know how to deal with this.  Just looking for encouraging words from others who know what I am going through.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 7/24/2008 8:54 AM (GMT -7)   

I was always saying I feel sick or my stomach hurts to my kids before diagnosis. it has been a year but things are much better. My kids used to not be able to sit on my lap cause it hurt and now they can hug me and cuddle. it can get better so keep your hopes up!!!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and now new med Clonazepam starting 7/18/08


Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 7/24/2008 8:57 AM (GMT -7)   
What helped you to finally get it under control?

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 7/24/2008 10:09 AM (GMT -7)   

Welcome.  I am so glad you found this site.  It is a great place to get information.  I wish it had been around when I was diagnosed.  I'm sorry that you have Crohn's. 

I know it is so hard to deal with especially with a family.  Your GI is correct in sending you to a specialist.  That doctor will hopefully be able to get things better under control for you.  The weird thing with Crohn's is that we are all different with regard to symptoms and we all respond differently to the various medications.  There is no one thing that works for all of us.  You will likely try many things before you find what works for you.

I know how hard it is with your children, but they will be alright.  My children were 1 and 4 when I was diagnosed.  It was hard at times, very hard.  We often had to change or alter plans because of my Crohn's.  I hated not being able to do all the things that I wanted to do.  My children would always say, "Are you going to the bathroom again?" when I was in there for the 20th time.  I had to take naps during the day when they wanted to play.  I felt guilty for quite a while about my illness.  But at some point I came to realize that I had to stop feeling so guilty because I could not help being sick.  My children are now 17 and 21 and they are understanding, compassionate and caring people.  They get it. 

Right now this is so new to you and your family.  Give it some time, don't feel guilty, rest when you need to and take care of yourself.   


Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 7/24/2008 10:17 AM (GMT -7)   

Thanks - I needed to hear that.  When I feel bad, I feel like there is no time to rest.  I have to keep telling myself this is not a cold that I can just blow off.  I know I need to rest but I feel so guilty.  My kids are 11, 7, 4 and 2.  They require so much of me when I am feeling good.  When I am feeling bad I just can't keep up.  It makes me feel like such a bad mom.  I just want to feel better and be able to do fun things with them and not want to crawl in bed and go to sleep all the time.


Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/24/2008 10:30 AM (GMT -7)   
Hi Fongers06 and welcome to Healingwell. Sorry for the reason you have to be here though. In the meantime before you see the specialist, has the doctor given you any meds to take in the until you see the specialist? Maybe that is something that can tide you over until you see the specialist. Just a thought!!

As for the kids, I think you have been given some great advice. I know its hard not to feel guilty because we can't do everything we WANT to do, we can only do the best we can. I am sure your kids understand. I have always felt lucky in that sense, because I enjoyed a long remission when my girls were young. Now that I am older I seem to have more problems with all the side issues related to Crohns than the gut symptoms. But we all feel your pain.

Look forward to hearing more from you. You will find this is a wonderful and supportive board. The best out there really.

God Bless
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 7/24/2008 10:43 AM (GMT -7)   
I totally understand what you are going through! My girls were 1 and 3 when I was diagnosised. They are now 6 and almost 8.

Don't worry about the kids, they will adjust. I would ask your older ones to help with the younger. They are old enough to get them snacks, drinks, help with diapers, pick up toys, bring the clothes to you from the dryer so you can fold them...those sort of things. I never complained in front of the kids...if they would ask, I would just tell them that I wasn't feeling well. If they ask me to play with them, I would have them bring a book, or coloring, or a toy over to the couch and we would play that way. You and your family will have to find a new "normal" that works for you. Since you both work, then your husband is going to have to pick up some of the slack at home to help you out at least until you find a med. that works for you.

I was so sick that we had to move in with my parents for a few months, so my mom could basically do everything for me and my family. Then when I was able to move back home, we hired someone to come in and clean the house every week. Then as I got stronger it was every other week, and then eventually I was able to do it all myself once again. Don't be afraid to ask for help. That was hard for me at first...but I eventually realized that friends and family are more than happy to help out, but they just don't know exactly what to do for ask them to do whatever you need.

Remicade gave me my life back! This Dec. will be 4 years since I started. I now do everything I want to do! Every once in a great while I while have a day where I just have to slow down, but that is just a reminder that yes, I still do have a disease, but you adjust, and keep living life to the fullest! Hang in there! It will get better, and your kids will be better and stronger because of you.

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 7/24/2008 11:35 AM (GMT -7)   
I totally know how you feel. I have had CD for 8 years but had my son 2 years ago. Its hard on days trying to take care of him and deal with my disease. My husband steps up to the plate a lot. And when he can't, then I just do the best that I can. There are so many things I want to do with my son and places I want to take him, but I have been in a flare since May and so this summer has just really been a bummer. But I look at this way, there is always next summer and the summer after that,etc...
The days I do feel good I just try to make the best of them!!!

One suggestion I have though, could your current GI maybe call and get you in sooner with the Crohn's specialist?? Sometimes that might help if the doctor calls for you. Just tell him they couldn't get you in for over a month and is there anyway he could maybe try and get you in sooner. Hope it helps!!
Feel better!
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
No Surgeries

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 7/24/2008 6:34 PM (GMT -7)   
Hi and welcome to HW some great advice and understanding here .I too hadsome bad days to get threw . I found getting a movie was helpful on some days. Hopefully you"ll get some meds that will help you feel better,I had to have a resection that has helped me. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 7/24/2008 10:47 PM (GMT -7)   
Hi Fongers - There are a couple of things you can try for a bit of relief until you get to see your specialist. Probably the easiest and one of the more effective things is take a probiotic supplement. "Ultimate Protec Multi Probiotic" by Natural Factors is a good choice - it is enteric coated so you get more live bacteria delivered to your gut. It also has 12 strains of friendly bacteria which have been shown to have anti-inflammatory properties. It should be available in your local vitamin shop - but phone to check. The next thing to try is diet. This is hard when you are barely making a go of it, but it might work for you. You could start by eliminating wheat (the most common trigger) and sugar (use honey instead). Some people have good results by going on the Specific Carbohydrate Diet, but that requires a major shift in the way you eat.
I feel your pain and hope that you can get some relief.
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