I had surgery recently for a near fatal ectopic pregnancy, and they put me on oxycodone(painkiller) afterward. That being said, I was not allowed to take my asacol while on it.
I'm now off but am still taking only prednisone--40 mg a day--doctor said only 20 mg, but I cannot function without the original 40 mg prescribed after my colonoscopy this past May.
I understand that it's normal to feel fatigue due to the blood loss from the Crohn's in addition to that blood loss from the pregnancy, but I also feel nauseated(recently started taking birth control. Could this be the cause?), horrible stomach pains, the desire to vomit though it never actually happens, and I'm still losing blood in my stool which, if it means anything, is not pure liquid but not pure solid either.
My question is do any of you take only prednisone and what were/are the results?? I'd like to start taking my asacol again, but it was left by the stove for the week that I was recovering and I'm afraid of what the temperature extremes may have done to it. I may call the pharmacy and see if they can replace it, but I feel like I'm not taking caring of myself by only take steroid medication.
I was told that sometime soon I would need to start something stronger than just asacol and prednisone though as my case of Crohn's is rather severe and asacol itself just won't suffice. They worked well for about
a month, but now I am right back where I started only maybe a little more bitter towards people; they don't understand why I can't get a job or start 'exercising and eating right' to feel better. Prior to this illness I did 200 situps a day, had visible leg and ab muscles, and ate nothing but the right fruits and vegetables, lean meats, whole wheat bread, avoided things like high fructose corn syrup or modified corn starch, and got plenty of calcium. Why is it so difficult for people to understand that what makes normal people healthy can harm those of us with Crohn's? It's not rocket science.
I've just been feeling terrible in general. I want to be able to live semi-normally again and am so afraid that I won't be well enough in time to go back to school this coming semester. Any advice for feeling better is greatly appreciated. I've noticed that the higher dosage of prednisone helps me function a little bit better, and kefir and ramen seem to be okay. I just am tired of sleeping most hours of the day and feeling dead anyway. Any words from those of you who actually know what is going on would mean a lot. You know how hard it is to find the right words from people who, no matter how much they love you and try to understand, simply can't.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking prednisone and asacol.
Surgery for ectopic pregnancy in July of 2008.
Post Edited (LMills) : 7/24/2008 3:15:41 PM (GMT-6)