Amen, Bellensteen!!!! Kudos!
Me? I'd do what I've done and have been doing: Mayo Clinic in Rochester, Minnesota, no question.
2nd choice: Cleveland Clinic in Cleveland, Ohio.
3rd: Johns Hopkins in Baltimore, Maryland
4th: Massachusetts General in Boston, Massachusetts
My symptoms begain in mid-1975. The locals had NO IDEA of what was going on w/me. I was Dx'd at Mayo Cinic, Rochester, in early 1976. Unfortunately, I couldn't tolerate the only medication they offered me at that time and didn't have sense enough to return to Mayo to see what else they had to offer.
By early 1978 I was hospitalized locally w/a full obstruction. The surgeon's here were trying to tell me the Crohn's was all up and down my small intestine and wouldn't even discuss what surgery they might be doing. I released myself and flew to Mayo Clinic, Rochester, entered the hospital thru ER and the Mayo docs could make no guarantees but said it looked like the Crohn's was confined to one area and that they would most likely only have to remove 12"-18" of the mid-ileum. The surgery and recovery was easier than the tubal ligation I had had done locally several years previous despite the ligation was "just" a "smiley" incison and the resection a full open abdomen. I then enjoyed a 20 year remission of symptoms.
When disease activity returned in 1998 I had the option of many meds not available when I was Dx'd and have been fortunate to experience at least symptomatic remission most of those 10 years. A recent visit to Mayo indicated the need for a resection of a high grade partial obstruction at the old resection site. Since symptoms are still pretty mild and intermittent I'm pushing my luck again and dragging my feet about scheduling the surgery. But I would NOT have surgery any place else but at Mayo Clinic, Rochester!!!
My family and I have been going to Mayo, Rochester, for some 50 years or so now. Its an absolutely fantastic medical facility and the epitome of efficiency as well as providing tremendous medical care. It is a 12 hour drive for us but well worth every second of the drive!
Drs Sandborn and Tremaine at Mayo, Rochester, are two of the leading IBD researchers in the country. Hanauer at ... Northwestern in Chicago, Illinois is another. Dr Wolf in Atlanta, Georgia. I can't remember the names of one or two Cleveland Clinic doctors who are leaders in IBD research and treatment.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Post Edited (CrohnieToo) : 7/27/2008 4:30:44 PM (GMT-6)