a calming blue hue to my post may help my mood..
went for the infusion, joint pain was all gone. no problem..got all hooked up sittin' there reading. about and hour into it i got the shakes, told my nurse, hey i am getting the shakes . so she came over and stopped the pump, shakes got worse, called the GI down fever went up from 97 to 101 in 20 minutes. got the benedryl and some tylenol. shakes stopped after about 1/2 and hour. fever was down by 2.5 hours... its now the next day tuesday, and all is well.
any way, my dr is going to talk to a guy up at the UW, to see what they think abou continuing the remicade. i want too cause it seems to be working on the fistula. and i think the shakes and fever spike was one of my usual fever incidents. thats how they act. and i had no other symtoms of reaction.
we may just to be safe do the pre-med system and slow down to 3 hours on the pump. i think that should work. i really want this to work, so i dont get to cut my butt.
i thank you all for all the suggestions and support. i means alot . oh and as a side note i am down to 195.. i gotta dig out my medium clothes box soon, i think some of my favorite t-shirts are in that box!
you know my scar on my abdomen that has been so wide, well its kinda getting "unstretched" as it seems. maybe i should look into getting it sewn together? or i can have a bellybutton made! or have a folding picture drawn on like the old mad magazine back covers!