I am so mad at my primary care doctor right now...

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Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 7/31/2008 1:01 PM (GMT -7)   
Got a rheumatologist appointment (which I had to insist on if you remember)... The rheumatologist saw me... did a physical examination... looked at my records... she said a lot of things...
But something that stuck out in particular was whether or not my doctor had referred me to an orthopedist... I said 'no' because of course he hadn't...
She said that was unusual... She was looking at the MRI I had done on my back... and apparently, it's not 'something I don't need to worry about', I have some degenerative changes in my back going on...
//>.<\\... So mad. I am definitely switching doctors...
And she also suggested the possibility of avascular necrosis before I even uttered my concern about it... Haven't got my hip MRI results yet... but she says she's going to obtain them from the hospital... and that she'll call me with the results tomorrow... (She apologized ahead of time if she doesn't call me because she is a very busy doctor... and she told me that if I don't receive a call from her to call her myself)... I also had a bunch of tests done (some repeats of the ones my doctor had previously done, but there was some new tests she did, too) They must have taken ten (maybe that's a slight exaggeration, but it sure was a lot) tubes of from me...
And I got an X-ray done on my... sacroilliac joints? So...
Hoping things will get figured out soon...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/31/2008 1:25 PM (GMT -7)   
Celey, sounds like you have yourself a really good Rheumy though. My Rheumy is really good too, she was the one that helped me figure out that my knee hurting wasn't just becuz of arthritis. I actually had a torn meniscus that needed to be surgically repaired. I didn't have a ortho doc beforehand though, she is the one who referred me to one. I found out from the ortho doc that I have more wear on my bones than someone my age (50) should have. So I am not surprised even though you are young, that damage is already there. This DD does alot of damage to our bodies, that I never knew about either.

I have not gotten a MRI of my hips done yet, I am going to demand one on my next Rheumy visit though. I am having more and more problems in that area myself.

I look forward to hearing whats going on with your hips and what the results of your MRI say. Do keep us updated! And definetly get a new PCP, the one you have doesn't sound like a good one. He is not proactive at all. Good luck!! (((Gentle Hugs)))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 7/31/2008 4:14 PM (GMT -7)   
good lord....celey...celey...celey....that really sucks. I hate having to switch docs in the first place but what is the deal! I love my new PCP, she always followsup and even sends a letter if she cant reach me...thats what YOU NEED. Good luck though, I really hope you find someone who cares about their patients instead of being lazy and thats what it seems like to me is alot of docs problems nowadays

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Humira every 2wks, 40mg Pred, Pentasa.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 7/31/2008 4:17 PM (GMT -7)   
Well, at least your PCP seems to have done one thing right. He referred you to a great rheumatologist. Maybe the only thing right. But you can always thank him for that when you say goodbye, send my records to ....
Good luck, Celey. Sounds like you are finally in good hands!

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 7/31/2008 5:25:19 PM (GMT-6)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/31/2008 4:33 PM (GMT -7)   
Co-Moderator Crohn's Forum.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 7/31/2008 7:01 PM (GMT -7)   
Celey, your Rheumy sounds great!
Could you ask your Rheumy about a good PCP?
My Rheumy told me of a good Gyno when I need one last year - no referral just a name. Jo

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 7/31/2008 8:47 PM (GMT -7)   
Might be difficult...She probably knows some good ones... but my rheumatologist isn't located in my immediate area....

I know a good PCP that I had when I was a kid... but I stopped seeing him for a few years... transportation issues...

Anyway... now I'd be treated like a new patient... and that PCP isn't accepting new patients... so... I'm kinda stuck...

I'm willing to go to St. Louis every now and then for the rheumatologist appointments... but there's no way I'd be able to go there for everything...

*I rather hate the city, but supposedly it has some of the best doctors...*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 7/31/2008 9:14 PM (GMT -7)   
Yeah for the Rheumy....will send out the monkeys on your PCP!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

Veteran Member

Date Joined Nov 2003
Total Posts : 518
   Posted 8/1/2008 5:33 AM (GMT -7)   
I'm just being nosy...where are you?...I'm in the metro east...O'Fallon. For my specialists I make a long trek out to St. John's Mercy. It really sucks with the road closures along 64/40.
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