Crohn's diagnosis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Aug 2008
Total Posts : 2
   Posted 8/2/2008 10:43 AM (GMT -7)   
My doctors think I have Crohn's.
I had a bowel perforation, and peritonitis, in fall 05 at the age of 35. They didn't catch it very quickly, in fact I was pretty close to dead when they finally figured it out. I also at the time had a kidney infection and a big ovarian cyst, which would have accounted for severe abdominal pain and fever. I had almost no appetite, but never got naseous or barfed, so they just sort of missed it, I guess, until I was grey and whining for pain meds.
They took out the last 18 inches or so of small intestine. Pathology was negative for Crohn's, cancer or anything else. I believe they did a blood test at that time, which was 80% indicative that it was Crohn's, but I don't know which test. I think I'll find out on Monday.
I had a LOT of diarrhea afterwards, like 18 months worth, and was pretty much useless work-wise for a very long time. They did a colonoscopy, and removed a polyp, but found no other problems. Six months later, they did a capsule endoscopy, again finding no inflammation or other Crohn's indication.
This spring, I have been knocked back into bed with severe pain in my gut. It has happened three times, and only the use of my (very strong) pain meds prescribed for my migraines has kept me out of the ER. A CT scan with GI contrast done about 2 weeks after the second pain event showed an ovarian cyst, but no GI inflammation.
The OBGYN thinks it could be a post-surgical adhesion, shutting or severely limiting the GI tract flow. My gastro thinks it is probably a Crohn's flare, since I never had any vomiting. I refuse to take prednisone, and things are dying down, I can eat again after almost a week.
I just don't get why they never found ANY pathology or inflammation, if it is Crohn's.
Any good comments?

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 8/2/2008 1:40 PM (GMT -7)   
Wow, what a lot you have been through! I wanted to say hello and welcome you here. You will get lots of great information and hopefully some answers to your questions.

I wish I had more insight for you, but I really don't except to say that Crohn's seems really hard to diagnose in some of us. I found out about mine about 17 years ago, but I suffered for about 15 years before that with all sorts of issues. They always seemed to blame it on ovarian cysts, which I do have. But honestly, I think once they see one of those cycts, they tend to think it is only that which is causing porblems and nothing more. Diarrhea for 18 months is not normal. Severe pain is not normal.

I hope you find out what is going on soon. If you can stay away from prednisone, more power to you!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7121
   Posted 8/2/2008 8:53 PM (GMT -7)   
I hope the doctor you see Monday has some anwswers for you Monday. I guess I would be asking why the perforation occured. That is s pretty rare event with limited causes. And the positive blood work is also a good indicator. When you had that colonoscopy did they take any biopsies to look for inflammatory bowel disease?

Wish I had more insight for you. Sounds like you have a pretty thorough GI. And adhesions can cause problems...let us know what the doc says on Monday.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

New Member

Date Joined Aug 2008
Total Posts : 2
   Posted 8/3/2008 1:29 PM (GMT -7)   
Well, they spent a long time trying to determine why I perforated. They just have no positive Crohn's signs other than the blood test, which I understand can react to UTI antibodies? I would have had a ton of those, with a bladder and kidney infection having me peeing bloody stuff, ten days before I perforated. They've got a diagnosis of 'ischemic' on the perforation right now.

I'm pretty sure that whatever is going on, is my gut not allowing anything to go past a particular point. Whether it is a post-surgical adhesion, or a Crohn's blockage, I don't know, but I do get better if I don't eat and leave all but the pain meds out.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, November 24, 2017 11:46 AM (GMT -7)
There are a total of 2,897,492 posts in 318,023 threads.
View Active Threads

Who's Online
This forum has 157593 registered members. Please welcome our newest member, Kiril93.
331 Guest(s), 9 Registered Member(s) are currently online.  Details
Timja, SomeonesMom, MauiViv, Scaredy Cat, Loutucky, gioconda, dnny-700, dbwilco, Tall Allen

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.