I've been having difficulties with an anal stricture for awhile (3-4years?), the main issue was just that doing a colonoscopy was rather painful even with the meds....
Anyhoo, about four months ago I started to have "seepage", never had it before, the occasional incident in the middle of the night and of course needing the bathroom 5- 10 times a day, but never incontinent. Until now.
Went to see my gastro, who referred me to a surgeon...and even then, the thought of having a colostomy didn't really enter my mind. I seriously thought that something else could be done....and when the surgeon started talking about "diverting the flow of stool", I STILL didn't put it together...the poor guy finally drew me a picture....slow realization, denial, etc. The main bits of the conversation were that I have a "fixed stricture", dilating it with a balloon has temporary effects, but not long lasting, surgeon said that I would need a colostomy within the next five years, maybe sooner, and not to leave it until it was an emergency situation...well duh.
I guess I'm looking for anyone who may have a similar issue and if they tried something that made the stricture better, easier to deal with, a magic wand...
Something other than the nuclear option.
Diagnosed at 13, am now 36. Bowel resection at 17 and two additional surgeries following bowel obstructions.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.