My Husband is sick again!

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New Member

Date Joined Aug 2008
Total Posts : 11
   Posted 8/8/2008 8:51 PM (GMT -7)   
Hello, I'm scrolling through the blogs and came across this subject of crohn's. Here is my story as the spouse of someone who suffers. He is hard working, independent, strong willed man who never calls out of work. 13 years ago my husband was diagnosed with reumatoid arthritis, then he was diagnosed with thyroid disease, then pulminary fibrosis, then ulcerative colitis he drives for a package delivery on the move all day and when your bleeding your intestines can't hold it always had a change of clothes and plenty of bags to go in. this went on forever. then he came done with pacreatitis because of the meds for ulcerative colitis. he had become so sick that he had to have all of his large intestine (total collectomy) removed. then had a bag for 3mo. then had a reversal his small intestine is now everything he didn't want a bag with his job. so he opted to still be as "normal" as possible he's been told he'll never have a bm like most. and then he was having symptoms again and now diagnosed with crohn's which I was told was rare due to the fact that they never saw any indication that it was ever present before the other surgery. any way now we've been trying to keep this under control with rounds of pred, lomotil , methotrexate, ect. Then last july had to go in the hospital for a blockage caused by scar tissue that was extremely painful for him.( hard for me to watch.) and he still went to work to keep us afloat so the kids and i had a roof. I work but I make enough to put the food on the table. and 1 year later as we speak he is at yale seeing his surgeon in the er to see if there is yet another blockage due to scar tissue. and maybe yet another surgery. This is very hard to keep going through. He so tired of this and sometimes says things that worry me about wishing it was all over if you know what i mean and i've tried so hard to remain a positive for him. but I must admit it's getting old but i believe in my vows. All of this has made him so much colder as a husband and I don't like it. I can never be sick there is no room. anyone else go trough this? how do we still stay strong for him and keep all as positive as we can? The hospital stays are long- weeks at a time with two kids there school and work it's always so hard to always be there which makes me feel guilty and pulled in a million directions. and he comments how i'm not there everyday. I just can't always do it. ANYONE

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 8/9/2008 6:24 AM (GMT -7)   
Hi Krisha,

I'm very sorry your family is going through this! Chronic diseases take a real toll on the family as well as the person with the disease. Thanks for being there for him!! His symptoms are real and effect more than is intestines. It very easy to become depressed -- but family members can suffer from depression too. The disease changes family relationships and sometimes roles and responsibilities. Adjusting to the new life takes time. Maybe you all would benefit from counseling and a support group? Getting support from others who are going through similar things makes us realize that we are not alone. You Doc may be able to recommend one or call the local hospital's patient advocate office. Remember to take care of yourself too.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/9/2008 1:46 PM (GMT -7)   
Hi Hang in there better days ahead. When a person is sick they sometimes say things like that but I think that comes from being worn out and in pain. He is lucky to have you and I bet he knows it. Have you someone who can take some of the responsibility of the kids when needed? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 8/9/2008 5:34 PM (GMT -7)   
Hi Krisha-

I'm sorry your husband is so sick and that your family is suffering. Its so hard when your sick and keep up with the family too. In our household,
I'm the one sick and we have 2 1/2 year old son. It isn't easy and I won't lie and say it is. Although I'm not as sick as your husband sounds.
He is very blessed to have you in his life. As fallcolors mentioned though, it is very easy to become depressed!! I highly recommend you all
go for counseling. We haven't but I reconginze the drepression and I take Wellbutrin for it. Without it, my husband can't live with me. LOL
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries

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