I have IBS, I guess. They thought it was crohn's (originally thought cancer due to rapid weight loss in beginning) until they did the last c-scope & all the biopsies were clean (I was currently on pred.). I had really thought they were right. I kept having a little while where slightly improved & weight holds steady, then all the sudden out of the blue something hits. I was told in October that there were a few small ulcers in my colon, up through the transverse colon. Nothing about the cecum or ileum was mentioned. I was told the gen surgeon who didd it thought it was lymphocytic colitis & to wait for the biopsy results. Focal active colitis was the result. Thne I was to take azulfidine for a month, and from what I had understood, it was NOT UC & would clear up after a month of drugs, maybe two. Then off the azulfidine for a month, I lost another 10 lbs & that's when the bowel problems seemed to show up (before I only had blood & 2 hard bms a day). Foods weren't digesting. I was beginning to feel so weak. I was at this point underweight. I ended up in the ER a couple times with pains, migraines, low potassium & dehydration. At one point, they gave me some steroids in my IV and gave me a small short burst of prednisone. I began to feel a little better, but the fatigue & dehydration & frequent BMs continued. No blood. I was sent to a GI who said she felt I had crohn's & I was put on the low res/low fiber diet, given the sbft which showed clumping of contrast, inflammation of either the ileum or small bowel loops overlying the ileum, but more probably the cecum. I was told it was consistent with IBD, but did not point to UC or CD. I was put on 20mg of prednisone. I started having this lump show up in my lrq, where I felt the stool was stopping. Once I had a BM it was gone. After a while on pred, I was feeling better but still having frequency & fatigue. I ended up in the ER again for hip/groin/low back pain (I was having ovarian cyst problems, too.) The nurse & doc looked at my tests & said they felt it was CD. I had I had laproscopic surgery for the cysts & also a D&C & hysteroscopy for neverending bleeding (thinking I had cancer again due to family hx). Everything was fine. Had the c-scope 2 weeks later while still on pred. GI said it looked clear but didn't want to take me off the pred & azulfidine until biopsies came back, she was very surprised, she still felt I had CD, & she was surprised the scope was clear. I was told I had a small internal hemrrhoid. I asked about the bleeding & she said that was the cause, the sbft must've been a mistake.(?!?) After the biopsies came back fine, I was taken off the pred & azulfidine & told I must've had a really bad case of infectious colitis that caused IBS which was what I was experiencing. I was confused, but kinda hopeful that was so. She wanted me to stay off meds & stay on the diet until I saw her again in September. I decided that if it's only IBS & I can stay off meds, I can stay off the diet too. To keep up my weight I have been on what I call the 2 candybar a day diet. hee, hee. If I pack in the calories, I am able to do it. I ended up changing my doc to the DO I had been seeing for back/flank pain (& that hip/groin pain) & he felt the pain was tied to the GI problem or some type of visceral problem. He sent me to another DO for a different type of manipulation & her opinion, which ended up in a bunch of tests for Lupus & RA & who knows what. Nothing really showed up except the borderline anemia. He put me on ampytripline, 1/2 pill at night, which is supposed to help slow my gi tract down (I have very fast transit time) and help with weight. I also went on birth control to help with my bleeding (which it has helped immensely) & also hope to help with weight. I have been on those since June & I had gained about 7 lbs. I have lost 4 lbs this week. I figured the bleeding was from the 'roid too, but it was more than ever before & dark red. Nothing on tissue or in the bowl, just covering the stool.
So there it is. The story of the last year & 2 months. I want my life & old body back. Any ideas?
Live for today, for tomorrow you might just get hit by a semi.