Starting to get down again need some hugs

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Regular Member

Date Joined Sep 2006
Total Posts : 44
   Posted 8/9/2008 2:40 PM (GMT -7)   
ive been doing pretty well with my crohns in the last few years after i got an illeostomy but since that isnt causing me trouble all these other things keep going wrong which im told relate to crohns. ive had problems with my eyes it got to a point where i had to go to hospital because i couldnt see, i have sore lumps on my legs i think there called erathema nodusum or something and i might have to take prednisolone again, and my arthritis gets so bad i can barely walk some times. now i think im getting another absess. It just seems like its a never ending story of problems i thought after my opp i would be all fine but things just keep going wrong. Any help?
24yr old female
15 years with crohns
illeostomy for 2 years so far
off meds
and those annoying bumps on my legs lol

New Member

Date Joined Jul 2008
Total Posts : 9
   Posted 8/9/2008 3:53 PM (GMT -7)   
I've never had an illeostomy, but understand your pain. I just had a resction done in June and hoped to feel better, but those fun Crohn's symptoms are just sneaking right back up. All we can do is try the best we can to take care of ourselves and see our doctors. Hope you start to feel better soon.

living with CD since 1989
38 years old, too many meds too list
two surgeries with re-sections

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 8/9/2008 8:11 PM (GMT -7)   


I sure hope you feel better soon!  I haven't had any surgeries yet, but I do have eye inflammation.  What kind of inflammation have you had in your eyes?

The arthritis is very painful!  I hope they find something that helps you!

Sometimes I feel like "This is it!  I am going to finally feel better!" and it lasts maybe a couple of weeks to a month, then everything happens all over again.  It is like a cycle that repeats itself continuously.

Take care and keep us posted on how you are doing!





Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/10/2008 5:42 PM (GMT -7)   
Hi I know how frustrating it can be at imes .Hope you got your eyes doing better. Sometimes it seems CD just effects too many body parts. Mt bowels aren't giving me grief but the body pains are not so good and at times it really discuss me that there is always more. Hope you feel better soon maybe your pred. treatment won't be long ,what meds are you on now?lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 8/10/2008 9:56 PM (GMT -7)   
Hang in there dear BIG HUG'S!!! i understand your pain, this freakin disease really sucks sometimes. But they had some major break throughs in the last few years on this disease and it is getting better for us. Hope you are feeling better soon take care..
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

Regular Member

Date Joined Nov 2007
Total Posts : 68
   Posted 8/11/2008 10:39 AM (GMT -7)   
I hope you get to feeling better soon.. I know its not fun to be in pain, nonethe less all day long.. (((Big HUGS))). Were here if you need to talk!
23 year old married female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; just stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love, Live by this and you can fight anything!!
There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 8/11/2008 11:16 AM (GMT -7)   
hi i am sending a big hug to you. i hope you feel better soon.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

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