Well, if we all on here have Crohns Disease I think we can all also relate. I discovered this wonderful disease way back 23 years ago. I will never forget the very first attack.
I was sitting eating dinner with my then husband. I even remember the food we were eating....pork chops, mashed potatoes and peas. After dinner, I got what I thought was just a stomach ache. That stomach ache lasted for almost two weeks. Ah those were the days.... it would come, and then go weeks, or months. It came without warning and left the same way. Not anymore, I AM CRONIC.... is that a death sentence? NAH
I went to the doc, and was told I had what the medical profession called " A nervous stomach" What the heck is that??????
After six months of crap, and as tenacious as I was and am, I made the MEDICAL PROFESSION do something about it.
I was told I had a disease. My knees went weak, I could almost see my life flash before my eyes. I had just had a baby one year earlier, I thought......will I see him grow up???
Talk about backwards, what a terrible thing for a specialist to say it like that. How about, " You have a condition known as Crohns Disease, it is not fatal, and with the proper diet and management, you will be fine.
Well........ this is what management meant....... I became a pharmacutical junkie! Percocet, Codiene, Ativan, sleeping pills, Demerol, zopiclone ( more sleeping pills) Then came Prednisone, of which I had every side effect it came with, so that was ruled out. I have tried Remicade, allergic, stemitil ( anti-nausient) sulfa drugs, bial-salts, the list is so long, I need to think. I have been on every drug and then some for crohns. I was heavily addicted to Percocet, took it for 7 years, had to have meth med to help me kick my habit. ( my doctor was my pusher, my connection ) I could and can walk in there, and ask for whatever I want. And he pulls out his pen and starts writting
I have been in clynical trials for crohns, a human guinea pig if you will. Nothing
I have had 6 bowel resections
3 fistula opperations I AM NOW WHAT IS CALLED CRONIC ( live with it every day )
over 100 tests.And after all that? I am not better off than before, except I have way less bowel, can't digest food well, skinny, have had anemia many times, potassium deficiency I could go on and on
And here I am today, there is no success story, I live this life, its all I have known for the past 23 years, I don't know what its like to have a solid bm. I don't know what its like to eat, and feel great after the meal. I have been bitter, had pity partys for myself every month, and continue down the road. Its not a great road, lots of bumps and potholes, but what else is there? Here I am. I want to talk to someone who has been though the ringer like me, just to know, that others go through that imbarrasment, running for the bathroom after a meal, having accidents in their pants like me. I am healthy looking on the outside, but man........you should see my insides.......