Anyone ever get stiffness/pain in their jaw like TMJ?

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Regular Member

Date Joined Dec 2007
Total Posts : 131
   Posted 8/12/2008 2:19 PM (GMT -7)   
I'm having a helluva time the last week or two with stiffness in my jaw. It came on pretty suddenly, so I think it is just inflammation from the Crohn's. I am having trouble eating because I can't open my mouth very wide. It seems like "TMJ" but I've never had any issues with my jaw. Every time something like this happens, by the time I can get in to see a doctor/dentist, the problem is gone. Murphy's Law.
Anyone else have this happen before?
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 8/12/2008 3:21 PM (GMT -7)   
Yes I have jaw problems too specially when my crohn's is flared. It will click real loud sometimes when I open my mouth.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg tapering
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 8/12/2008 8:28 PM (GMT -7)   
For some unknown reason I have pain on both sides of my lower jaw upon taking an intial bite of any food as I start to chew. Figured it was some form of TMJ. Hasn't caused me stiffness yet and some would say it would be a blessing if my jaw actually locked(: If you have inflammation there, might I suggest an ice pack or a bag of frozen non-cooked rice in a pillowcase? The rice seems to conform better to the body than those stiff ice packs and it would be reuseable.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 8/12/2008 8:39 PM (GMT -7)   

I have TMJ syndrom and my jaw will at times click and at other times will not.  Sometimes it clicks really loud!

It would be very interesting to see if this could be linked to Crohn's--it is inflammation so I would not be surprised. 

My jaw has never locked up on me, but it does give me bad headaches from time to time--usually it depends on how much stress I have and how much grinding and clenching I do.

I see my GI next week...I might just ask if TMJ CAN be related to having Crohn's. 

Good luck with your jaw!  TMJ problems are NOT fun!


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Date Joined Mar 2007
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   Posted 8/13/2008 1:04 AM (GMT -7)   
I have suffered from TMJ for many years... caused many , many terrible headaches... A couple of years ago, my denstist said my jaw on both sides had completely collapsed... it was bone on bone. Now I have days when my jaw hurts ... it is difficult to eat... and it leads to migraines. My denstist suggested massage therapy which helps some and for me a hot or warm compress actually helps relieve some of the tension in the muscles supporting this collapsed jaw.
Good luck ... I know how much it hurts! Hope you find a solution very quickly and you are relieved of your pain.
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis, PTSD ,general anxiety disorder.

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 8/13/2008 5:27 AM (GMT -7)   
Yes,I also get pressure in my teeth and jaws,I truly think that my bite is off,I can tell by the allignment of my teeth.

Regular Member

Date Joined Jul 2008
Total Posts : 186
   Posted 8/13/2008 7:09 AM (GMT -7)   
Okay, that's so weird you posted this. I was just diagnosed with a slipped disk in my jaw on my right side. I have had pain in my jaw for about 6 months, but lately, I can't even open it more than an inch, and it pops all the time, when I'm eating. And, I get headaches and earaches from it. I was wondering the same thing... if it is related to my crohn's or my meds, as I was on Cipro for five years. I asked my crohn's doctor and he said it is not related, but I think everything is related.

I am due to see another dentist who specializes in jaw treatment shortly. I'll keep you posted.

Regular Member

Date Joined Jul 2008
Total Posts : 471
   Posted 8/13/2008 8:17 AM (GMT -7)   
I also have TMJ. never thought it could be related. just add it to my list of medical mysteries I guess.
27 female
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!

Regular Member

Date Joined Oct 2007
Total Posts : 77
   Posted 8/13/2008 9:48 PM (GMT -7)   
Recently, I had a lot of tooth and jaw pain.  The pain was on the right side right in the joint.  The tooth pain floated around.  I saw a doctor who said I had sinus congestion and allergies.  I took an antibiotic for 10 days and am using flonase, claritin, and sudafed.  My pain is mostly gone, but the allergy connection is hard to understand since last year I tested negative for the 30 most common allergies of the area.  My allergist upon hearing what the doctor said and prescribed is ordering some RAST blood tests to check for allergies again.  Meanwhile, I emailed my gastro specialist to ask if the pain could be inflamation from the Crohn's and he said that it is not likely.  I'm sooooo confused, because honestly, I think it must be from the Crohn's --especially if I keep testing negative for allergies!

Regular Member

Date Joined Oct 2005
Total Posts : 168
   Posted 8/13/2008 9:51 PM (GMT -7)   
Yep, sounds like me. I have pain in my jaw and have found myself jaw clenching and grinding my teeth during the day and at night. I posted something like this a while ago and someone told me that it could be from being uncomfortble and having pain. Either way, I definitely have jaw pain.

diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 8/13/2008 9:52 PM (GMT -7)   
I've had this since I was a teenager. A few times it was so bad I could only open my jaw a little bit. Preventing me from even being able to eat! I had to sit there with my jaw relaxed for a few hours before it would allow me to open it all the way again. Now I mostly will have episodes of pain, stiffness, and clicking. Lots of clicking! Drives me bonkers!
My dentist told me to stay away from chewing gum, said it would make it worse.

Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapering down again at: 4mg now, Asacol, Questran, Toprol XL (for high blood pressure).

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 8/13/2008 10:22 PM (GMT -7)   
this is so weird,i haf TMJ it never use to bother me much but lately its been real sore,i got prescribed a muscle relaxant and some ibprofin but i can take the ib coz it upsets my stomach,i checked out a website and its caused usually by stress and grinding teeth,do any of you also get tinnitus (ringin in ears) TMJ can cause that.I use a hot water bottle on the sore joint it helps with the pain but other than that there isnt musch done about TMJ
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun

Regular Member

Date Joined Dec 2007
Total Posts : 131
   Posted 8/14/2008 7:33 AM (GMT -7)   
Wow. Thanks for the responses everyone. I saw my chiropractor again last night. Did some pressure point stuff to try to help it, and he also gave me some TMJ exercises to try out. Most of the stretches involve stretching the neck and shoulders, and only two which involve actual movements of the jaw.

I have to believe this is just inflammation in yet another area of our bodies from this lovely disease. Seems to do a lot of things that can't easily be explained medically.
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 8/15/2010 7:18 PM (GMT -7)   
I think I am having this again. I posted a couple of months ago about oral crohn's inflammation without ulcers, and maybe this is what is going on. Some sort of mucosal inflammation...? It feels deep in my jaw on the sides.

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 8/15/2010 10:37 PM (GMT -7)   
I have had TMJ problems since around the time my Crohns started.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Nate in NY
Regular Member

Date Joined Mar 2010
Total Posts : 66
   Posted 8/16/2010 9:39 AM (GMT -7)   
Ok-gonna try this again.
I get jaw pain right before the Uveitis flares up. I think it may be caused by inflammation in the lymph node in front of the ear but who knows.
Crohn's 5/10,Bilateral Uveitis
Sigmoid Colectomy x3 January 2009,loop Ileostomy reversed Memorial Day 2009,Gallbladder out the same time(Failed from TPN,or starvation!)
Psyllium and Flax seeds, Metamucil(not sugar free)PB-8 probiotic, omega 3 fish oil,folic acid,L-Glutamine, absolutely no Inulin or chicory root, lots of greens.

Regular Member

Date Joined Aug 2010
Total Posts : 129
   Posted 8/16/2010 5:00 PM (GMT -7)   
I was diagnosed with TMJ too (~1year ago). My dentist suggested Ibuprophen; however, that's a no-go for my tummy. I wear a mouth guard at night and sometimes throughout the day when I have problems, and that seems to help. I'm currently having a severe Crohn's flare, and I don't know if it's just so mild compared to other pains but no TMJ problems so far. Mostly, my fingers, elbows, hips, knees, and ankles hurt. Maybe I just don't talk as much when I'm having a flare because talking to people gets pretty irritating when you're in pain.
Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.

Forum Moderator

Date Joined Dec 2008
Total Posts : 15235
   Posted 8/16/2010 9:53 PM (GMT -7)   
I have it too. My dentist recommended I use a nightguard.
March 2007: Diagnosed with Mild Proctitis - Canasa as needed.
August 2008 - December 2008: FLARE & Anemic - Started Asacol!!
January 2009 - December 2009: REMISSION!! Asacol (9) + Canasa 2x Daily
December 2009 - January 2010: FLARE!! Asacol + Prednisone + Canasa
February 2010 - April 2010: Colazal + Prednisone + Canasa
May 2010 - June 2010: Lialda + Cort Enema + Prednisone : Colonoscopy: Mild / Moderate Active Pancolitis
CURRENT: DOING OK! Prednisone, 6mp, klonopin, Canasa + Vitamin D

Veteran Member

Date Joined Feb 2010
Total Posts : 925
   Posted 8/17/2010 12:26 AM (GMT -7)   
What is TMJ?  But no jaw or dental issues for me at this time.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
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