white cell counts

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Regular Member

Date Joined Aug 2006
Total Posts : 98
   Posted 8/16/2008 12:47 PM (GMT -7)   
Hi y'all - I have a new chronic issue showing up every time they do a CBC before I get my remicade IV... my white cell counts are abnormally low... over a full point.  I've had problems with hemoglobin over the past few CD dignosed years, but the low white blood cell count seems to be confounding the docs.  I don't have any bone marrow problems or diseases known for dropping the number.  Does anybody else on remicade have low white cell count issues?
If it doesn't go back up the next time I have a CBC, they're going to make me see a blood specialist.

24 year old grad student trying to cope with CD.
Remicade, calcium, iron, multivitamin, lexapro 

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 8/17/2008 6:11 AM (GMT -7)   
Yes when I took Remicade it took my white cell count way down. The third infussion was so bad it landed it me in the hospital for week
and thats when I had to stop. Also reason why I'm afraid to try Humira and all the others. My doctor is really trying to keep me away
from them due to my reaction to the Remicade.
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS and Arthrities too
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 15mg and stuck
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin twice a day
No Surgeries

Regular Member

Date Joined Aug 2006
Total Posts : 98
   Posted 8/19/2008 8:10 PM (GMT -7)   


Did they ever give a reason as to why the remicade was doing that?

24 year old grad student trying to cope with CD.
Remicade, calcium, iron, multivitamin, lexapro 

Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 8/21/2008 10:33 AM (GMT -7)   
Yes-my white blood count dropped so low they took me off of humira.  They sent me to a blood specialist
who couldn't find anything.  It has gone up a little since going off it, but not much-scary.  I won't be taking any of those types of meds anymore!

Regular Member

Date Joined Jan 2006
Total Posts : 158
   Posted 8/21/2008 11:07 AM (GMT -7)   
Same thing happened to me when I was on Humira. MY WBC count was so low that my GI sent me to a hematologist. He did a bunch of tests, couldn't find anything and just told my GI to keep an eye on it. He said if it got below 3.0 that I would need to stop the Humira. Sure enough, it kept plumeting and I had to stop Humira for about a month. I went back on it and my WBC count went right back down. I ended up stopping Humira for good a few months later - I wasn't responding to it and all it was doing was botching up my WBC count.

Regular Member

Date Joined Aug 2006
Total Posts : 98
   Posted 8/22/2008 1:08 PM (GMT -7)   
I guess I wonder what's worse... having a low WBC or being resigned to the couch on account of Crohns severely dropping your hemoglobin (among other things)?
24 year old grad student trying to cope with CD.
Remicade, calcium, iron, multivitamin, lexapro 

Regular Member

Date Joined Nov 2006
Total Posts : 47
   Posted 8/22/2008 6:04 PM (GMT -7)   
white cells can go down when youre in some antibiotics. thats what happened to me. it affected my white cells and platelets. i am off the antibiotics for nearly 2 months. ill have a blood test end of august hope everything is back to normal. unless the pentasa has affected them as well. grrrrrr never ending!!!!!!!

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 8/25/2008 9:09 AM (GMT -7)   
LBJ, methotrexate will also lower your WBC count

How ironic is it that I had a WBC of 2.2 (reason unknown, thoroughly worked up) and never got sick and then I start on Methotrexate and my first blood test shows a WBC count of 3.7 (which is about what it ran for the last 25 years) and I get sick with a fever that lasts for days. Interesting, shows that it is not just the WBC that fight infection.

I suspect pentasa lowered my WBC from the usual 3.5 ish to 2.2 The hematologist said that as long as pentasa seems to be working and the low WBC count doesn't seem to be hurting me any, then its ok to stay on the drug.

I agree with you superspike, sometimes you have to choose between many crummy options.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin,levothyroxine, sertraline, lyrica, methotrexate, down to 2.5mg prednisone and miserable.     

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