Humira and Lupus-Like Symptoms... I'm tired of this...

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Regular Member

Date Joined Jan 2008
Total Posts : 88
   Posted 8/18/2008 8:01 PM (GMT -7)   
I've been on Humira for about 8 months. For the past two months, I've been to the ER twice... once for pleurisy and another time for the worst headache ever. My joints are swollen and achy, I'm tired, my mouth is full of sores, my eye is inflamed, my head hurts, and it hurts to get out of bed. My Crohn's has been fine - it's everything else that's bothering me. I never had any of these symptoms with my flares... it's always been the usual abdominal pain and nausea/vomiting.

Now, my lungs are aching again, so I'm assuming the pleurisy is back. I'm waiting blood test results from a rheumatologist, and I'm going to see my GI on Friday.

I'm so confused. I don't know if I'm getting arthritis, lupus, or what. I'm also scared of this pleurisy issue. It hurts so bad.

Has anyone else had any of this happen while on Humira? I thought this was supposed to help people with joint problems! UGH!
Crohn's Diagnosed in 1996.
Currently on Humira - One syringe every other week.
Now in remission.
Have tried Prednisone, Pentasa, Flagyl, Cipro, and Imuran in the Past - they aren't effective now.
Hospitalized only once, but that was enough!

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 8/18/2008 8:39 PM (GMT -7)   
Have they run blood tests checking for lupus antibodies? It is simple enough to check for those and if I were you, I would insist they order such tests. If the rheumy included those in his recent order, then you should know soon enough if that is the problem.

I'm sorry you are having such a difficult time. I was there once - had a severe reaction to Humira that took over 6 weeks to recover from.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 8/19/2008 5:09 AM (GMT -7)   
Hi,I agree,get the test,I did get drug induced lupus from Humira,I was on it for 10 months,I went off of it,so now I'm on Asacol and Imuran,and doing just fine,knock on wood smilewinkgrin

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 8/19/2008 6:41 AM (GMT -7)   
ooh--My left eye is giving me lots of trouble. I thought it was the dry beach air. I get the joint aches on and off. Wow. I hope you get some answers soon--I agree about asking for the blood test!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira

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