Crohn's and Crohn's alone??

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Melissa H
Regular Member

Date Joined Mar 2008
Total Posts : 85
   Posted 8/21/2008 8:50 AM (GMT -7)   
Hi Friends,
So I was lying in bed yesterday, barely able to move and a thought occurred to me.  What if it's not just Crohn's that I have?  Is this possible?  Why haven't any of my lame-*** doctor's ever mentioned it?
Besides my typical bathroom issues that come along with Crohn's - I am EXTREMELYfatigued, my body aches quite often - to the point where it hurts just to be touched by anyone, my joints ache, along with other minor things that I've always just blamed on CD.  What if it's something else going on like Fibromyalgia, or Lupus.  Which admittedly I know nothing about...but I'll be researching next.
I'm seeing a new GI doc on the 29th, should I ask her about it or go back to my primary?  What kind of experience do you guys have with other auto-immune diseases?
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...and always ready for a nap.
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007. Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring off and on.  Taking RF Plus, Similase, Cortine, Pregnenalone, Dehydrone5, Vit B/Folic Acid injections. Using Levsin and Charcoal Caps when needed.

Regular Member

Date Joined Dec 2006
Total Posts : 149
   Posted 8/21/2008 8:57 AM (GMT -7)   
I haven't been diagnosed with any other auto-immune diseases, but I do get achy and very fatigued when I am flaring. Sorry I'm not more help, I'm sure someone else will be along shortly to give you some answers.
Bad flare May '06 resulted in CD diagnosis-symptoms for 10 yrs prior.
Asacol: 2400 mg/day
6mp: 100mg/day
Prednisone: 10 mg/day
Entocort: 9mg/day

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/21/2008 9:23 AM (GMT -7)   
I also suffer with Fibromyalgia & Osteoarthritis along with my Crohns. The joint issues could very well be Crohns related, but when you mention that it hurts for someone to touch you, that sounds more like Fibro. My personal opinion is that all of us Crohnies should also have a Rheumatologist as part of our doctor team. Its not always just the Crohns related arthritis, sometimes it can be more. Pred causes alot of bone loss, so we should all also be taking a calcium supplement too. Hope that helps.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 8/21/2008 9:33 AM (GMT -7)   
Yes, I agree with Nanners. I have often times wondered what my doctors might miss because we are all so focused on the CD. I started asking for referrals to the Rheumy and Endocrinologist and the like just to make sure that nothing got left out or over looked. And I pay close attention to symptoms that could be signs of other auto immune diseases now because my Dad was Dx with an Auto Immune disease a few years ago. I got the CD from my Mom and now I have my Dad's side to worry about too. I guess I got the genetic lottery!!! But all kidding aside, we are our own best resources. We have to keep on top of everything and not rely on our doctors to do it for us. If you are thinking that something feels off, then do your research and then bring it to your doctors attention.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2008 10:16 AM (GMT -7)   
Crohn's can have extraintestinal manifestations like rheumatoid arthritis, fatigue and a long list of many other complication, skin, eyes, joints, ect.

My bum is broken....there's a big crack down the middle of it! LOL :)

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