I'm so sorry your daughter is having to deal with this. I self diagnosed at 13 and was basically told I was lactose intolerant. But, my Mom had CD and I knew what I was looking at. Having gone untreated for 10 years, I don't know what damage was done. Like Nanners said, this is disease that needs to be managed with maintenance drugs. Some people have success with diet, but in the long term, who knows what underlying damage is being done. Like I said, I managed for 10 years by diet, and ended up with 3 resections in my 20s.
That isn't to say that her quality of life can't be improved by having a very good diet and sticking to it, but as a teenager, it is very hard.
Also, having basically lived with CD my whole life (my Mom and me) I have seen such changes in the treatments and drugs available that make everyday life so much better, so I am sure that in the near future the possibilities will just be great as far as our options for treatments. I personally take an off label drug that has made a huge difference in my quality of life. More and more research is being done all the time, so chances are good that remicade is not going to be a "forever" drug for your daughter.
As far as periods go, a lot of us have more trouble with our periods and our CD. Both my Mom and I were officially diagnosed when our first born children were 1, so I truly believe that hormones play a big part in my CD. I had my tubes tied years ago, but I take birth control pills to help with my heavy periods, and they do help a ton.
I have 2 daughters myself and I worry constantly about them, given my family history, my younger one in particular. She also has always had period issues and we had to put her on birth control pills to help control it at around 14. So I do understand where you are coming from. We don't want to put more drugs into our kids, what kind of message...... But she was miserable and missing too much school. It really did make things easier for her, and she is much less moody as a bonus!
As a last little piece of advice as a daughter who witnessed her Mom have this and as a Mom who is worried about her daughters. My Mom tried hard to live a normal life, she didn't always succeed, but she tried, and she set a good example. So when I did finally get my diagnosis, I wasn't shocked or scared, it was just, "OK, what do I need to do to get better". And I have tried to do even better for my girls. So, if you don't treat it like some sort of horrible, scary thing, your daughter won't be as likely to see it that way either. I've never let it stop me from doing anything, and I've had it pretty bad. So there are ways to go about just about everything. I've worked, raised a family, traveled and led a great life. Your daughter can too!
CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....