whine whine whine...

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Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 8/24/2008 6:02 AM (GMT -7)   
well, I'm back up to 24 on the prednisone.. I was down to 4mg for a little bit.. that was exciting and my face was getting back to normal and I was losing the weight! I'm so angry.
My doctor thinks that I may possibly have a fistula. So, he kick up my steroids and threw my on a round of antibiotics-- whit out even checking. I don't think that my symptoms really match those of a fistula. I think one day last week, I had a low grade fever, there's no foul drainage although, for one day I just bled and bled. My bottom was so irritated that it would bleed when I wiped.. I think the only symptom that I really have that would indicate a fistula is right before I have to go to the bathroom there's this severs pain right around my anus.
I suppose he's assuming the worst and just treating as such. Which isn't such a bad idea.

He's already sent my file over to Seattle's Virgina Mason hospital where I would have the opportunity to meet with a specialist. I'm really excited about that. I've been on the steroids for almost a full year now.. Hopefully I can get some answers there.
26 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
I've had flares in my mouth, stomach, large intestine, and the duodenum.

I currently take Humira 40mg bi-weekly, prdnisone 8mg (oh so close!!), methotrexate as a weekly shot, prevacid, celebrex, foilica acid, and.. I think that's it.


Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/24/2008 9:36 AM (GMT -7)   
Go ahead and whine, vent whatever you want, thats what we are here for. Hopefully its not a fistula and the Pred gets things back under control soon. (((HUGS)))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 8/24/2008 2:20 PM (GMT -7)   
Lets hope that a specialist can shed a little more light on your problems.... I know I found out so much more with mine, not always
what I wanted to hear, but at least the problems were found.... Made me feel less crazy, because I knew it wasn't all in my head LOL...

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 8/24/2008 6:19 PM (GMT -7)   
Yeah, I remember getting stuck at 5mg & later at 2.5 mg. Getting off the old evil Pred ain't easy!


Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 8/24/2008 6:25 PM (GMT -7)   
God the prednisone weight gain distribution is so irritating. I feel for you..here's to you getting better and weaning off of it soon. Sorry you're having to go through this..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

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