Entocort discontinued-NOT

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Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 8/25/2008 6:09 AM (GMT -7)   
I just got a call from my pharmacist, letting me know that Entocort has been discontinued, they are no longer making it. I checked on a couple of online pharmacies and they said the same thing. My doc wrote me a prescription for it Friday! I'm going to call him and ask, what now?! I got the last 30 pills the pharmacy had, but that wasn't even the whole script, they were going to order more. A shame, because entocort has always been great for me, low side effects, worked well in a pinch. Just wanted to pass the word along!

I called Astra Zeneca and she said it wasn't discontinued, just not being supplied by a few suppliers anymore! PHEW! That was close! She said maybe my pharmacist should call a different supplier, he said he did. I've never liked him anyway, I guess this is my sign to switch pharmacies!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

Post Edited (kimberlayn) : 8/25/2008 7:34:19 AM (GMT-6)

Texan with Crohn's
Regular Member

Date Joined Dec 2007
Total Posts : 362
   Posted 8/25/2008 6:13 AM (GMT -7)   
Wow. I wonder why? I remember how that stuff tore me up BAD. I am going to do some digging on this one. Interesting.

Regular Member

Date Joined Nov 2007
Total Posts : 68
   Posted 8/26/2008 8:59 AM (GMT -7)   
IS this really true they are d/c entocort
I will seriously cry it has been my lifesaver

update: i just called my pharmacy and they told me that they are not cx it here in houston.. where do you live?

23 year old female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; B-12 vit.-stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love *There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.*

Post Edited (ddr030505) : 8/26/2008 10:12:46 AM (GMT-6)

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 8/26/2008 11:02 AM (GMT -7)   
What does cx mean? That they are or are not carrying it? Entocort is my emergency flare med as well.  I will be very upset if it is gone.  Recently a bunch of suppliers stopped making the generic of Levsyn because it just wasn't profitable enough.  Something has to be done to protect patients.  Drug companies, while still a business, should not be allowed to just stop making something that people need to survive.  When we had the big bird flu scare there wasn't enough Cipro around should there be an outbreak.  The Govt ASKED the company to license their product to a few other manufacturers so that there could be a larger stock pile should it be needed.  They said NO.  And there was nothing more the government could/would do about it.  Something has to change.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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