Prednisone YOWZA!!!

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Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 8/29/2008 7:37 AM (GMT -7)   
 just started prednisone about 8 days ago. That crap is like lightening in a bottle! I came home from the hspitol at 10:30 am and cleaned my house all day........twice! Now I think I'm going out to the garage to build a Boeing 767 out of scrap metal! Thank God for the Valium they gave me or I wouldn't even need the airplane to fly.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 8/29/2008 8:55 AM (GMT -7)   
LOL! I jused to get up and hit the stairmaster at 5:30 am when on a high enough dose! Crazy, huh? Clean house is a good side effect... if only all the hard stuff didn't come later (moon face, tapering issues, etc.)! enjoy the energy!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 8/29/2008 9:45 AM (GMT -7)   
I was on Pred for over a year about 18 years ago. I never got the moon face but did have some wild mood swings at times. I hope I'm off of this stuff before that starts again. I can't remember how long I had been taking it before I felt the mood swings. Seems like several months maybe. I have gained over 15 lbs in the last two weeks since I started it but wow I needed the weight!
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years. Now on Remicade, iron, and two months of prednisone. Feeling like a champ!
God Bless. Tony

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 8/29/2008 10:17 AM (GMT -7)   
I felt the same way when I first started it. A word of caution though: You CAN overdo it. So please, be careful with how active you are no matter how good it makes you feel. I had a long discussion with my GI about's just that no matter how great you feel there are still things going on so you still have to be extremely cautious with what you eat and how you handle your body. I had just moved into an apartment when I started taking the stuff so I basically set the whole thing up myself, cooked excessively, walked a great deal more than I should have, and ate things I REALLY should not have.
Just don't want you to end up where I did(In the hospital for most of the summer).
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 8/29/2008 4:04 PM (GMT -7)   

Well fly your whirl-wind butt over here and you can clean my house as many times as you want!!  It really needs it!  tongue

Take care!

Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.  Allergic to Remicade and Humira.  Currently on 6MP.

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 8/29/2008 4:40 PM (GMT -7)   
I agree. I need to pace myself. I havent been active for a long time and even though it feels wonderful to feel like doing my old stuff again Im making myself take it a step at a time.......well, sort of. I went from mountain climbing, running and long distance bike riding to a virtual 5 year couch potato from the pain of arthritis and anemia. I have to remind myself to ease back into a normal life again. Love you all. Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years. Now on Remicade, iron, and two months of prednisone. Feeling like a champ!
God Bless. Tony

Regular Member

Date Joined Apr 2008
Total Posts : 289
   Posted 8/29/2008 8:22 PM (GMT -7)   
Do take things easy.
Remind yourself that this energy you are feeling is FALSE.  It is caused by the pred.  If you over-do it, your body will take strength from your fat/muscles (usually we can't afford to lose this) to keep itself going at that break-neck pace, and you won't notice the depletion because the pred makes you feel so energetic.
Slow down and work slowly up to doing more active things.

I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 8/29/2008 8:43 PM (GMT -7)   
Gotta love the pred rush. I am a house cleaner too when on high doses - you feel quite invincible really, but like Heidi says it is a false energy, so do take it easy.

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 8/30/2008 8:14 AM (GMT -7)   
I have been taking Prednisone for 4 days now. I was taking entocort, but it didn't seem to be working very well. My doctor said to stop the entocort and start the prednisone. Oh boy, since the prednisone I haven't had so much stomach pain for about 2 years and it only seems to be in the evenings.... confused

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 8/30/2008 10:14 AM (GMT -7)   
LOL I had the same effect with it. I miss that energy, once you get low enough on the dose it leaves you. Then it was back to needing a nap in the middle of the day. I had it take it early early in the morning so I could sleep okay at night. But man, I didn't have energy like that in years! It was great, I felt back to my old pre-Crohnie self on the pred.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/31/2008 5:54 PM (GMT -7)   
Hi I never really had the urge to clean and clean but it was nice to get some things done. I will say one thing it was better then I had felt then before going on it. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Jul 2008
Total Posts : 20
   Posted 9/1/2008 4:21 AM (GMT -7)   
That is good info on the false energy with Pred. I am new to this Dx and have been on pred for almost a month and have an insanely clean house which is a nice side effect after being a half dead slug for so long.  I work out everyday and have started to feel like a human again, I was not aware that I should be careful because you do suddenly feel like you have super powers LOL!  It put a little fear in my heart to think of losing this power once the pred is gone but one day at a time right.
Thank you all for being here :)


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