How thoughtful of you to help me out. Thanks so very much!
It is great to read some positive stories about CIMZIA. I have been on everything like I had mentioned before and literally nothing has helped. Doctors are desperate and don't know what to do.
Since my Crohn's is literally EVERYWHERE except one spot, part of the anus surgery is really not an option. But my Gastro did mention to meet with a surgeon. It is on my list but of course I am procrastinating because nothing about seeing a surgeon is NOT scary, you know?! It is one of those risks that I am not sure I am ready to take. The risk of surgery (which would be taking my colon out) and not getting better OR staying better for only a very short time. I wish we all had more answers.
At this point I am really my own doctor as no one can help me. I am on a steroid taper but that is it. Well along with some vitamins, probiotics, etc. Some pain meds here and there, Benadryl to help me sleep @ night and some nausea meds. when needed. But I really try not to take pain meds if I can avoid it, but we know how that can be. Hospital visits are killing me. But it gets to the point that I have no choice with the severe pain, bleeding, D 40 times a day etc. Sorry......... I am venting.
My doctor did mention possibly trying CIMZIA. But my whole thing was, well if it is just like Remicade and Humira, then why would it work for me?! I try to have a good attitude but it has gotten to a point where that is hard as I am sure you understand. Maybe I will look in to CIMZIA more and talk to more doctors about it and do some more research. It just gets to a point where the possible side-effects are so yucky. That is why I got off of the HUMIRA. It stopped working right after my blood clot in my lung and then after trying to give it chance after chance, we decided to get off of it due to it not working and obviously the possible side-effects that come with it.
I will remember you when I have more questions which I know I will. Again I really really really appreciate your help and feedback and the time you gave me:)
How is CIMZIA different than HUMIRA for you?!?
I have had Crohn's since I was 21 years old and I am now almost 28....
I am currently on Prednisone and have tired literally every drug available.
Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!
Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....