I have been reading here and have learned that even if a CD patient is in remission, has minimal flares or mild symptoms, that they should remain on a maintenance medication. I have been re-searching CD meds and their indications, but I haven't come across any that specifically say they are for maintenance.
I want to discuss this with my Dr, as I am currently on a taper of Prednisone (from 30mg) and am currently at 5mg for this last week, so we need to discuss meds.
In the past I've been on asacol, colazol, 6MP, balsalazide and remicade. I don't feel I had any positive results because of the damaged/diseased portion of my colon that was very bad. However, it has recently been removed (resected?) and I am feeling much better.
On my own about a month ago I began taking acidopholus and I feel that helped considerably.
I do not think I am in remission, though I am feeling better than I have in a long time. I am still having numerous trips to the bathroom, numbering 8-20x/day. Most BMs are almost fully firm, some slightly looser, but still sort of formed though soft. Gas is my biggest problem. Urgency is still rather 'up there' but I can hold it off for a few minutes to give me time to get to the bathroom (walking instead of running).
What I would like to discuss with my GI specialist is a maintenance med, and something that will help with motility OR possibly get my BMs to exit in larger amounts with fewer trips to the bathroom. I seem to 'go' most often after I eat.
Any suggestions for me to talk to her about tomorrow?
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry.
I'd much rather laugh.
2001 Dx'd with UC. No remission. 5/2008 surgery, removal of 6" of left side colon. Dx changed to Crohn's. Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.
Post Edited (78SilvAnniv) : 9/2/2008 6:19:04 PM (GMT-6)