hey. i feel your pain. I have a rv fistula that has been open for 10 months. It was simply awful. constant drainage that burned my bum and gave me a nasty butt rash. can't go swimming, bike riding, practically anything. and I felt like everytime i stood up i got a woosh of new stool pouring out. about 2 months ago I started to develop an abcess. So i went to my gastro and he put me on Cipro and Flagyl to get rid of it. Wouldn't you know that it helped my fistula too! Granted, it's still open, i can tell when i make funny farty noises out of it. But it has almost completely stopped draining. and the antibiotics also firmed up my stool. I have 2 bm's a day now instead of 15. It has been awesome. I feel like an almost normal person again. And I had a surgical checkup yesterday and the fistula is now starting to heal, finally! So, I don't know if you've tried antibiotics, but you might see if you can do a round to see if it helps. Just be aware of the possible side effects. I haven't yet had a problem, but there are those on here that have.
diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous