Thank you all for your thoughts and the warm welcome.
I believe that most are simply ignorant about this disease and like a lot of you have said just don’t see how “yuck” we feel on the inside. My family very female dominated and we are expected to do get though the day no matter what, which has helped me tremendously as far as getting though my days. I have established over the last about 5 years “down time” with my kids. We are in the house and getting around for the next day by 7 or so. We will finish up odds and ends for the next day, go though what we are going to do the next day, lay in bed for reading and then go to bed.
I actually find it easier to admit that I am tired or having a bad stomach day since I have been diagnosed. It has actually been liberating to realize it is not all in my head.
I recently didn’t go to my cousin’s birthday party because it was a 40-minute car ride and I just was tired. I thought about taking some Imodium and just going, however I thought better of it because it was a Sunday and the week before school started for my kids. I knew the next week was going to be full of open houses, running to the store in the evenings to pick up extra school supplies, etc… Also, it was the week the college students came back to campus and working in the Registrars’ office means being on my feet a lot that week at work. My family didn’t say anything about this and my folks took my kids, so it all worked out.
I am declining the Endocort and have more pain across my mid-section at the one-week mark. I am going to tough it out a few more days to make sure it is just withdraw from the medication. I have been on it since January, so I have to believe some withdraw is normal.
I appreciate all the diet advice. My GI doctor told me to find what works for me and I have been experimenting.
35/f proud single mom of 2
Diagnosed with GERD/Acid Reflex 2002
Diagnosed with IBS 2007
Diagnosed with UC, then Crohn’s 2008Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily