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Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 9/8/2008 4:22 AM (GMT -7)   
Hi All,
This is my first post on the site.  Just joined to-day.
I have crohns disease for the past 30 years.  At the moment am doing ok. On Remicade for the past 2 years for fistula, which seems to have cleared up.  Looking forward to chatting to you all
Keano smilewinkgrin

Cookie's Wife
Regular Member

Date Joined Aug 2005
Total Posts : 299
   Posted 9/8/2008 5:22 AM (GMT -7)   

Hope you find the advice/information and vents very helpful. This site has been a great source of support for me!


Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 9/8/2008 5:47 AM (GMT -7)   

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 9/8/2008 6:04 AM (GMT -7)   
Thanks for welcome. I am looking forward to getting advice from ye all and hopefully be able to give advice as well. I live in Ireland so it look like most of ye are living in the U.S. I will have to keep the time difference in mind.
Thanks again :-) KEANO

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/8/2008 7:17 AM (GMT -7)   
Hi Welcome to Healingwell, There alot of good ppl hear.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Regular Member

Date Joined Jul 2007
Total Posts : 239
   Posted 9/8/2008 7:54 AM (GMT -7)   
Welcome Keano! There are alot of people here from all over the world, England, New Zealand, Australia, Canada!
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bentyl, vicodin as needed, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/8/2008 8:51 AM (GMT -7)   
Welcome to Healingwell Keano! You will find alot of friendly and supportive folks on this board. Look forward to hearing more from you.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Aug 2005
Total Posts : 42
   Posted 9/8/2008 9:53 AM (GMT -7)   
Welcome, this place has been my lifeline through this. Happy you found us, Dawn☼

Regular Member

Date Joined Jul 2008
Total Posts : 71
   Posted 9/8/2008 9:28 PM (GMT -7)   
I'm fairly new here too but would like to welcome you. This is a wonderful group of people.
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 allergic to Asacol
 Colazal made it worse
 Prednisone 20mg X2 daily   
 Flagyl 500mg X2 daily
 First Remicade infusion 8-9-08
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 

Regular Member

Date Joined Oct 2005
Total Posts : 168
   Posted 9/8/2008 9:44 PM (GMT -7)   
Welcome Welcome! This place is a life saver. you'll love it here!

diagnosed: Crohn's Aug 2005
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 9/9/2008 1:29 AM (GMT -7)   
Hi Keano,

Im from ireland too and just joined recently after being diagnosed in April.
Its a great site full of really helpful info.
Whereabouts are u in ireland?

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 9/9/2008 3:19 AM (GMT -7)   
Hi Roxette,
Im from Limerick, how about yourself ? This is a great site. I have been looking at it for some time but only joined recently. Looking forward to talking to you and sharing our woes ! :-)

Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 9/9/2008 5:11 AM (GMT -7)   
Welcome! I am new here too, yet as the others have said it is a wonderful place for support and information.

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/9/2008 10:57 AM (GMT -7)   
Hello & welcome to the fold...

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/9/2008 5:22 PM (GMT -7)   
Hi Welcome and glad you joined us. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/10/2008 8:55 AM (GMT -7)   
Welcome! Hope to get to know you!
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 9/10/2008 9:25 AM (GMT -7)   
hi Keano. im a dub originally but live in Kildare now. This site is great isnt it?
What doctor are you seeing at the minute?

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 9/10/2008 10:01 AM (GMT -7)   
Hi Roxette, ya this is a great site. People  are so helpful.  I feel I could talk about anything related to crohns here.  Im under Dr. Heather Holloway here in Limerick.  She is brilliant.  For years I was attending Prof. Fielding in Dublin and ust to go up to Beaumont for my usual tests etc. but unforunately he died.  But I must say Dr. Holloway is excellent.  Mind you things have really improved since I was first diagnosed 30 years ago.  Hope you are feeling ok at the moment.  I see that you were only diagnosed last April. I remember when I got diagnosed (after loads and loads of tests I might add ) it was almost unheard of.  Looking forward to chatting to you :-)

Regular Member

Date Joined Aug 2008
Total Posts : 63
   Posted 9/11/2008 1:16 AM (GMT -7)   
Im under Dr Barbara Ryan in the hermitage. Not feeling so great at the moment but i think its just trying to fing the right medicaiton to get me on an even keel. Its the tiredness more than anything killing me at the minute! Am actually due back at the hospital today so ill let you all know how i get on.

Regular Member

Date Joined Sep 2008
Total Posts : 76
   Posted 9/11/2008 1:26 AM (GMT -7)   
Best of Luck Roxette. Hopefully they will get it right for you. Its trial and error for a while. You may need to go on some Iron if you are not on it already. I find Spa Tone very good and it does'nt upset my stomach.
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