My example of light at the end of the tunnel just got sicker

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Veteran Member

Date Joined Jan 2006
Total Posts : 3141
   Posted 9/8/2008 4:48 AM (GMT -7)   
This disease really stinks!  I am so angry right now, but not for me.  My friend who lived with severe UC for many years finally had a colostomy and she looked stupendous.  She got her life back.  I was so happy for her and it gave me a lift of extra hope.
Now she is in the hospital with a new diagnosis of crohns in her terminal ileum/anus.
I just need to vent about how much I hate this darn disease for her.  It's just not fair to get so far and be pushed backwards.  I am hoping she will meet the criteria for one of the newer meds or the stem cell trial to get her back in shape quickly.  I just don't know what they will do for her with no large intestine.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Cookie's Wife
Regular Member

Date Joined Aug 2005
Total Posts : 299
   Posted 9/8/2008 5:18 AM (GMT -7)   
That always seems to happen with this disease.  Just for a moment you thnigs start to feel better then WHAM... you have a setback.  Give your friend a hug for me and tell her that she's in my prayers!


Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/8/2008 7:20 AM (GMT -7)   
My prayers are with you and your friend.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 9/8/2008 9:24 AM (GMT -7)   
How horrible for your friend, especially since her surgery for colitis, may not have been appropriate for crohn's. These are the times that you really need strength to get through it. So tempting to look backward and say if only. But the only path is forward. Your friend has to come to terms with her new reality. Hard! Hard! Hard!

30+ years living with Crohn's.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/8/2008 11:20 AM (GMT -7)   
That's terrible!! I don't understand why things happen the way that they do sometimes, but I have to think that it will be for good in the end. I hope they find a better way for your friend. Let her know a lot of us are thinking for her and wishing the best. You're a good person to be sticking by her through this. I know too many people(or should I say not know?) who completely disappeared from my life after this disease began to take over.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

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