And my story gets...worse. Please anyone does this sound familiar?

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Regular Member

Date Joined Jan 2006
Total Posts : 303
   Posted 9/8/2008 2:34 PM (GMT -7)   
So Im 7 months post op 63cm bowel resection. My CD went from bad to worse after the surgery. I have been Pred dependant ever since. I started Humira 6 weeks ago and have gotten worse....Still on 30 of PRED
Last night I woke up with the worst pain in my life I thought I had perfed again. I called my GI this morning who of coarse was not in the office and the NP sent me for a STAT CT scan.
CT Scan prior to surgery 7 months ago showed CD at the T. Illieum
CT Scan today shows distended small bowel loop in the mid left abdomen, small bowel obstruction in the left mid abdomen, thickened folds in hte right mid abdomen, thickened folds in the right lower abdomen. And kidney stones to boot!!
Does this mean the CD has spread throughout my bowel?
The NP called My doc and he feels I need a surgical consult. I go back tomorrow to see him. Im afarid because the diseased portions are so spread out they will have to remove a ton of bowel.........
Also, I have an appointment Thursday to be screened for Prochymal Clinical Trial Any suggestions?
29 YO Male
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08

Veteran Member

Date Joined Jan 2003
Total Posts : 6131
   Posted 9/8/2008 4:12 PM (GMT -7)   
thats not the case if you have a good dr. it could be temp swelling of the bowel which may go away on its own. distended bowel could be just gas build up. as long as your still going or passing gas you do not have a complete blockage. thickend may be some edema from the swelling . CT scans are not the be-all see-all for crohns. i would bet they will want a barium xray set soon. hey good luck

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/8/2008 4:14 PM (GMT -7)   
Oh My goodness, Lots of things going on there.Hopefully, if you do have further surgery, they can get away with just removing the
obstructed area...
I wish you a whole lot of luck, let us know how you get on!!

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 9/8/2008 4:41 PM (GMT -7)   
I just wanted you to know that you're in my thoughts and prayers - I hope you get some answeres soon -please keep us updated,


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/8/2008 5:21 PM (GMT -7)   
Hi Sounds like your not doing so great are you passing any gas or stool? I don't know if it has spread but am hoping things will get better for you. Any chance that some of it could be a mechancial obstruction perhaps things got twisted up a little. Hang in there. Maybe some of the areas are small that are effected. Let us know how you do tomorrow. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

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