possible crohns, nothing showing up in tests,

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Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 9/9/2008 8:53 AM (GMT -7)   
Hi there, i am a 30 year old female, who has had ibs for quite some time, most recently in the last 6 months, i have had non stop diarrhea, and have lost about 35 pounds, every day i notice i lose more and more. I have had a colonoscopy, and a small bowel follow through, although nothing showed up, the doc still says that early stages of crohns can be hard to detect, therefor I will need to have another test in which they shove a tube down my throat under sedation. My symptoms are as follows, diarrhea, loss of weight, 35 pounds, abdominal and pelvic distention, hardly no appetite, becoming very full and distended even when eating a little, always feel nauseous, and am very very sore.
I was also diagnosed with fibromyalgia, having all 18 tender points as well as more degenerative disc disease than i should have at this age, in october of 2006,
I am not trying to diagnose myself, however, i am very sick, and need to know whats going on, i have a five year old girl and cant even look after her hardly, between the headaches, the fibromyalgia and the stomach and instestinal problems. I just would like some answers and some insights.
I do not see my doc again until october 13th, in which he will probably give me that other test where they stick the tube down your throat.
I really really hope that they can find out whats wrong with me, i dont know if im sore in my joints because of the fibromyalgia, or if im sore because of whats happening with my abdomen, ie, cramps, feeling sick, diarrhea, sometimes up to 20 times  a day, and its every day, not always 20 times a day, but there isnt a day goes by that i dont have it atleast once or twice.
regards, and thank you ,
I am also new to the forum, and not sure how to use this lol

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2008 8:57 AM (GMT -7)   
Maybe you could ask your doctor to do a pill cam on you. Many folks have finally gotten a diagnosis after this test. Very simple you swallow a pill and it takes pictures all the way thru your system and can show inflammation where scopes do not go.

I sure hope you get a diagnosis soon and get on the road to remission. Welcome to Healingwell!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 9/9/2008 9:08 AM (GMT -7)   
Hello and welcome. I'm sorry for what you are going through. I too had a young child when I was first sick so I understand how frustrating it is to not be able to care for your child the way you want to. The important thing is to keep pushing for some sort of diagnosis and not give up and start to believe that it is all in your head. You know that something isn't right. It may not be CD, but it is something and you deserve to find an answer and some treatment. The tests we have to go through are not always the most pleasant, but the doctors are pretty good about giving proper medication so that they are tolerable.

As far as getting to your next appointment, I would suggest going to a very low residue diet or even an all liquid diet. You need to get nutrition into you, but you also need to give your bowel a rest. Try some soft foods, like mashed potato, rice, pasta, fish, baked chicken, soup, eggs, custard, puddings, or even some Boost or Ensures. If you can tolerate milk products drink milk shakes or yogurts. Basically when my guts are in an uproar I go against the whole FDA healthy eating thing and eat all the things they say are bad for us. The whiter and more processed the better for me, ie, Apple, bad, Apple sauce, a little better, Apple cider, a little better still, Apple juice, the best choice. Try to eat a little bit every few hours and don't over load your tummy with big meals. Even if it is just a few bites of a cracker. Good luck and please keep us posted.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 9/9/2008 9:17 AM (GMT -7)   
I have a cousin going through the same thing.  She's 18 and has had soft stools/diarrhea for months now.  Lost tons of weight (which she doesnt really have to spare) because she's just not hungry anymore (we all know that feeling).   She had a colonoscopy and bowel follow through.   First they mentioned she has UC, then they tell her nothing shows up.    They want to run more tests.   Meanwhile the poor girl just started college (a couple hours from home) so she doesnt have an easy time of getting to appts AND they havent given her any anti-inflamatory drugs or anything to help (although mine did help her when i gave her some).
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 9/9/2008 9:57 AM (GMT -7)   

Welcome Kelly!

I second Nanners on the pill cam.  My second GI suspected Crohn's based on my Colonoscopy but the pill cam is what confirmed it and gave me the "solid" diagnosis.

My small bowel follow through didn't show anything, either.

I have also had the upper endoscopy done (when they did my Colonoscopy, they did that as well) and they sedated me, so if they DO end up doing that test on you, it really isn't bad, just to let you know.  :-)

I sure hope you feel better soon!  I am also a parent, I have a 9 year old, and it is so frustrating when you don't feel well and want to spend time with them. 

Take care and please keep us posted!

Veteran Member

Date Joined Oct 2007
Total Posts : 1190
   Posted 9/9/2008 11:22 AM (GMT -7)   
Don't diagnose yourself until you get a proper answer - at the moment yu have IBS - let's keep it at that until you find out more.

Diagnosis Oct 07 and then Aug 08: Inditerminate Patches of Mild Colitis (including Rectum) - Currently Minor Bleeding
Medication: 1000mg Mesalazine Suppository at night.

Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 9/9/2008 2:31 PM (GMT -7)   

Hi guys, and thanks for the welcome, i would just like to say that i have been eating normally since yesterday, i had my small bowel follow through around 9, and i was finished at about 10:15, giver take a few, I have not been able to have a bm since then, is this normal? i believe that im starting to become constipated, as i am quite distended from eating and not evacuating, Hope that im doing this right, thanks again,



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