After spending the night in the ER, we didn't accomplish much. On a good note Sierra does not have a blockage. She has a slight infection in her intestines. As far as the pains, they are blaming them on the stricture. They immediately hooked her up with fluids since she was dehydrated. They gave her antibiotics, morphine and a dose of steroids. So again steroids are her bandaid. Don't get me wrong they work while she's on them but as soon as she's off she goes right back into a flare. She says they make her miserable though. The Dr. said pains, naseau and vomiting are just part of crohn's.
Apparently in order for surgery to be an emergency, the intestines must rupture. They gave us some financial resources to look into for surgery. Unfortunately, I am not getting my hopes up. So far everytime we apply, we get turned down. We make too much too qualify. Sorry for a little venting and getting off track....
I know many of you live with strictures. How do you manage the pain, etc? Maybe she doesn't have a high pain tolerance? Do you live on a liquid diet forever? Is this what she is going to feel like everyday for the rest of her life? I know everyone is different and trial & error brings answers but we are at our witts end - I'm feeling really helpless. Thank you all for your help! I pray for all of you and a cure for Crohn's!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07- she had surgery for abcesses 11/07. She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa 500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3