I am so darn sorry to learn of your results from the PCE, OneBlood!!!! (((hugs)))
too bad :0(.. but now at least you know.
Exactly, and that's pretty much how I've always felt about
it too. Yeah, it sucks that it's back, but now I know for sure it's the Crohn's and not something else.
Hi I am hoping the Hum. will bring you some relief and help you get better. What is your Dr. saying if it doesn't help? I sure know what you mean thinking surgery, did your dr. mention surgery? Hopefully you"ll heal in there. Hoping for the best. lol gail
Well, I haven't talked to him specifically yet. I've only spoken to a nurse, and she didn't give any indication about
what he was thinking if it didn't help. I see him on the 19th though, so I'll find out soon enough I suppose. He hasn't mentioned surgery before, but this is also the first time he's been treating me through a flare. He started out as my GI while I was away at college, and I've been seeing him exclusively for a year now, but when I first started seeing him, the decision to get on Humira was already made, so really, this is the first time he's seen me in a flare.
I havent really noticed any difference at all since being on Humira. But my GI said that Humira is more so to try prevent the Crohns from coming back, not to actually heal it. Although he did say it has improved since Ive been on it, but the only way to get rid of it is to have another resection (which is on the 19th). My surgeon said they were not only removing the active 5 inches of Crohns that they found during my colonoscopy, but they were also going to put a catheder all the way through my intestines to catch any other problems and remove those as well. So perhaps surgery would be a good option for you? I too was anti surgery, but I'm sick and tired of all the meds I'm on not working, so hopefully the surgery+meds will do the trick. Goodluck to you!
Humira did put me into remission for 9 months or so, the longest I've had since being diagnosed, but it tends to be the trajectory of my disease to quit liking whatever meds I'm on around a year after starting them. I have extremely refractory disease, I've been told. But, I don't know, maybe surgery would be really helpful. My biggest fear is to finally have surgery after not considering it for so long, only to have active disease come back quickly afterwards. But, on the other hand, I could have a pretty long remission, who knows?
Good luck with your resection!
Crohn's Disease for two years and counting (diagnosed March 8th, 2006)
Imuran: no more! Got the GI's okay to stop taking it :)
Humira: once every week temporarily (hoping to stop a flare)
Dicyclomine and hyoscamine for intestinal cramping and spasmswww.myspace.com/onebloodonelife