I had my first resection almost 30 years ago. It got rid of the terrible bouts of cramping pain and vomiting that I'd suffered with for almost 20 years. Yes, it was worth it in my case. I basically traded that pain for chronic diarrhea and occasional adhesions and strictures, but I think I prefer those to the terrible pain.
30yrs! Your case encourage me a lot! I wish I can have that luck! My terminal ileum is narrowing with scar tissue and ascending colon is also scared. Although I feel better at the moment after 1 month prednisone, but I only eat soft, low fibre food and I cann't continue steroids. I think finally I have to get operation.
what medication you took after your resection? diet? nutritious supplements? Thanks a lot!
It probably sounds unbelievable, but I did not take any sort of medication after my first surgery. The doctors I dealt with at the time seemed totally clueless about
Crohn's Disease; I think I was one of their first cases. They basically told me that I was "cured". Haha. I eventually was told to take Questran for my diarrhea, that helped for several years, but eventually I had to stop using it. Ended up in the hospital once with an obstruction, another resection 3 years ago, took Pentasa, tried Remicade, to no avail...but was ultimately told that my surgeries were responsible for my diarrhea and discomfort. Right now I'm just watching what I eat, and trying to maintain. I still am grateful for the years of no more cramping, nausea and vomiting.....I went through hell with that before I had the first surgery. I was basically diagnosed by accident; they thought I had a growth on an ovary and that was why I was being operated on! Boy, were they surprised when they
opened me up. My doctor said, "I can't imagine what pain you had to have been in all those years". I was just relieved to finally have a name for what I'd been through. Thank God that medically, times have improved. I wish you luck.