So, after changing GIs once cause the first GI I ever went to refused to help since I was "in remission" and going to a second GI who told me that I only had IBS and put me on meds that didn't help, I went to a third GI. And yep, I truly, truly have Crohns. Absolutely no doubt about it. C reactive was up, albumin was down and inflammation in my gut.
Up to a month before I had my most recent colonoscopy I couldn't stop having diahrea. It was constant and like 5 times a day, completely liquid with mild pain. Now after the colonoscopy (and being put on Asacol 800mg 3xday), I have extreme constipation/diahrea (starts out C for 3 or so days, and then goes to D) with extreme pain. I think that's mostly from the bloating and stretching of my intestinal walls. Luckily no bleeding or anything, but tons of mucus and all around uncomfortableness.
I go back to see the newest GI in a couple weeks to talk about how the meds are going. I'm curious though. There was a peer of mine in high school that also had Crohns and he was put on Remicade. I've talked to him recently and he says that on Remicade he hasn't had a flare up in 6 years and feels hardly any pain. I've ALWAYS felt pain, ever since a couple years before I was diagnosed the first time in 2004 (and before it really flared up). I even felt extreme amounts of pain in remission when my previous GI said he could do nothing about it. Back then I was on pentasa and entocort, don't know the dosages though, sorry.
Anyways, my question to all of you is, is there a medication out there that has helped you substantially in your symptoms? And when you are in remission/on pills, do you feel pain, like pain that is so bad that you can hardly think and can't talk?
It's all just very aggravating right now because I'm registered with my school for Crohn's Disease as being a disabled student, but many professors tend to be a bit snippy about it. And I doubt they believe me or understand what I mean when I say sometimes I feel extreme pain and have to miss class. It's really not the bowel movements that cause me to not be able to attend their class but the physical pain I feel associated with it. And while I haven't talked to my new GI yet about something for the pain (cause he wants to see if it goes away with the Asacol which is hasn't) the two others I saw told me to talk OTC, which really don't help. I'm really under the impression that doctors don't take me seriously, and its very depressing.
I really appreciate any input.
Dx with crohn's since Oct '04.
Dx with IBS since June 4, 2008.
Have had symptoms since 2000.
About to see a nutritionist... I need help understanding food! :)