Hair Lose and Crohns

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New Member

Date Joined Sep 2008
Total Posts : 11
   Posted 9/16/2008 12:53 PM (GMT -7)   
Just curious, I just started to notice that I am loosing more hair than usual. I have really long hair so I an used to the random "shedding" hairs that come out but recently there have been alot more. Its strange because my crohns is pretty mild, and I am not flaring. Has anyone experienced anything like this?
Diagnosed with Crohns May of 2008. Still in the experimental stage of drugs. Currently on Lialda and hopefull.

Regular Member

Date Joined Jul 2003
Total Posts : 127
   Posted 9/16/2008 2:29 PM (GMT -7)   
I lost some hair there for a while too. It is better now and I just thought it might be from some of the meds I was taking. My hairdresser noticed it and said something to me about seeing a doctor because of it. Now she is very cautious about perming or coloring my hair.
"Shoot for the moon.  Even is you miss you will land among the stars."
- Les Brown

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/16/2008 2:46 PM (GMT -7)   
I am currently in a flare and I am losing hair quite badly, but I do lose hair quite often. Mine is very long, which is good for camo! Azathioprine can cause it too.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

Regular Member

Date Joined Apr 2008
Total Posts : 289
   Posted 9/16/2008 2:46 PM (GMT -7)   

I've also noticed a marked increase in loss of hair (when brushing and showering).  I also have long hair to below my bra strap.

*I am hoping it is only due to teh twice-yearly "shed" that normally occurs.  It usually happens in spring and is something I've noticed over the past 20+ years.


I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 9/16/2008 2:50 PM (GMT -7)   
Ive always had some hair loss with my Crohns, because my body doesnt like to absorb vitamins.  But since being on Prednisone I can pull out hand fulls of hair...I ended up getting 3 inches cut off just so it wasnt that heavy and try to help it a bit. Thank god I have thick hair.

Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 60mg Pred, Levbid, Nexium.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/16/2008 8:27 PM (GMT -7)   
I am fairly certain I am losing my hair from my pentasa. I am using rogaine now to keep more from falling out.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2008 7:10 AM (GMT -7)   
Hairloss can be caused by the disease itself, meds, diet and I just learned recently anemia can cause it too.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jul 2006
Total Posts : 73
   Posted 9/17/2008 9:24 AM (GMT -7)   
i had hair loss only once when i started taking iron the first first time. but since then i've been ok.

Chelle's Sick
Regular Member

Date Joined Mar 2006
Total Posts : 61
   Posted 9/17/2008 11:02 AM (GMT -7)   

I too have been losing a lot of hair lately! cry I have thin hair to begin with so it is stressing me out. When I was on methotrexate I lost hair because of that but after stopping the meth it stopped falling out. I haven't had a problem for the past year until the last month or so. confused

I just had my blood work done and doc said it all looked perfect so I don't know what is causing it....I'm hoping it will just stop, at least before I am completely bald.





Diagnosed w/ Crohn's Nov '05.
Current med's = Humira (Every 2 weeks) started in April '07.

Post Edited (Chelle's Sick) : 9/17/2008 12:14:42 PM (GMT-6)

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 9/17/2008 11:15 AM (GMT -7)   
I am sure it was the pentasa or Imuran I was on before Humira causing my hair loss. I took Folic acid and Biotin when I remembered... It seemed to help some but I bet I was not absorbing the vitamins well... I was flaring at the time.
talk to your Doc. you might need to take some Folic Acid.


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 


New Member

Date Joined Aug 2007
Total Posts : 5
   Posted 9/18/2008 7:13 PM (GMT -7)   
I am experiencing this too. I have had Crohn's for 6 years, and never had any issues with hair loss, even when the disease was at it's absolute worst in the beginning. Since the beginning of the year, I've only had one tiny flare up, but I've gradually lost about 60% of my hair. It was already fine and damaged to begin with. Now I can't even style it. It's very horrific and depressing, being that I am only in my twenties. The absolute worst part is that I lost my job, lost my insurance, and can't afford to see a doctor for it.
Living with Crohn's since 2002.

No insurance, and no medication.

Regular Member

Date Joined Jan 2008
Total Posts : 121
   Posted 9/18/2008 7:48 PM (GMT -7)   
I have intermittent hair loss. I think it's mostly from stress. Whenever my Crohn's is flaring (usually when I'm stressed). I shed tons of hair but for some reason my hair doesn't appear thin. It is frustrating! Good luck. :)
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 9/18/2008 9:18 PM (GMT -7)   
Hugs Katah! I am so sorry to hear you lost your job and all!

I am on Pred, Pentasa, and MTX. My hair is really brittle and comes out more when I wash it and brush it than it used to. I also had quite a bit cut off not that long ago, and it is still in sad shape. I hardly ever style it with either a flat iron or curling iron anymore either--I cannot imagine what impact that would have on it now!

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 9/19/2008 6:14 AM (GMT -7) everyone else said....meds and vitamin absorption have added to my hair loss (no hubby I did not get a dog and not tell you!)

I found that the Pentasa increased my hair loss. On top of that I am anemic. I also discovered that brittle hair and hair loss is increased when you eat VERY low fat. Since I often go low fat when my gut is struggling, I notice an increase in problems then.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

New Member

Date Joined Sep 2008
Total Posts : 11
   Posted 9/19/2008 7:52 AM (GMT -7)   
I just got a call back from my doctor, he did some blood tests and I am anemic, with very low iron (I gave up red meat because I could not process it) He said to take some Iron supplements and my hair loss should slow down. Thanks everyone!!!
Diagnosed with Crohns May of 2008. Still in the experimental stage of drugs. Currently on Lialda and hopefull.

Regular Member

Date Joined Nov 2003
Total Posts : 437
   Posted 9/19/2008 10:35 AM (GMT -7)   
I am losing hair with Crohn's, without being on any CD meds. If this keeps up I'll have to shave my head!

New Member

Date Joined Aug 2007
Total Posts : 5
   Posted 9/20/2008 8:05 PM (GMT -7)   
so what do you guys do to help?

i've tried biotin.. it's been over a month and no results so far. my only real answer right now is a round brush, thickening creme, mousse and a blowdryer.
Living with Crohn's since 2002.

No insurance, and no medication.

New Member

Date Joined Sep 2008
Total Posts : 1
   Posted 9/20/2008 8:30 PM (GMT -7)   
8 years ago, my hair started falling out by the hand fulls. All the hair along my hairline for about 2 - three inches was gone. I kept asking the doctors. First they said it was post pregnancy then they said it was my birth control, then they said it was just from having a flare with my Chron's. Finally, I met a girl who had UC and she told me that Asocol made her hair fall out. So, I quit taking it, and low and behold my hair grew back. Since then I have refused to take anything but Entocort when I have a flare. It works great for me. Every few months I take it for two and then taper off. Then I will have several good months and then when I feel like I'm having a flare I start taking again. NOW, my Doc says I can't keep taking it. and wants me to take Lialda. I have 0 side effects from the Entocort. No swelling, no bone loss(I had a scan), no fatigue, no mood swings. I have no doubt, that my hair will again fall out with the Lialda. It's the same stuff!! and in addition, I have researched and it is for release in the large intestine and the colon. My disease is in my Terminal Ileum. It is my opinion that the doctors don't know what they are prescribing, Some company rep, says "here give them this" and they say. OK. I am very frustrated because I told my doc I did not want to take Asocol and she said she was putting me on a new drug to try and when I researched it, IT'S THE SAME DRUG, only a time released formula. WHY CAN I NOT KEEP TAKING WHAT WORKS? I ask her and she says, you just can't keep taking the steroids. Why the heck not? I'm not on them continually. I'm just frustrated and tired of the run around.

A Beautiful Mind
Regular Member

Date Joined Feb 2011
Total Posts : 79
   Posted 1/21/2013 4:03 PM (GMT -7)   
When I'm on imuran I lose about 50% of my hair all over, and the color changes. As a male I guess I'm lucky because I just keep it very short.
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