I know how you feel about
being left "wide
open." I did very well on Remicade - it put my guts in remission and really helped with my ankylosing spondylitis issues. Then after my Remicade and Humira reactions and my recent diagnosis of lupus, my rheumy told me no anti-TNF meds ever again. I feel vulnerable too. I am also downright angry about
getting lupus from these drugs.....so many mixed feelings..
Hope everything in your system stays calm and on a steady course.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.