I am so embarrassed.

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Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 9/19/2008 1:51 PM (GMT -7)   
I have been having to wear alot of adult diapers recently (been buying them from walmart where I could call ahead and have them bagged up and ready to go when I get there, so no one else could see).  Well the VA sent me some (3 boxes of 60) which was nice cause I do not have to pay for them.  Unfortunately, they were clearly labelled and stacked next to my front door of my apt.  There were five guys standing there taking cell phone pictures of this (college campus).  I know 2 of them in passing, former students. 
Just so embarrassed.

Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 9/19/2008 3:04:15 PM (GMT-6)

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/19/2008 2:31 PM (GMT -7)   
I find it kind of pathetic that they have nothing better to do than taking pictures of something like that with their cell phones. It really disgusts me how people in society have so little understanding of a person's need to use that. I'm really sorry that happened...I hate that it has to be embarrassing in the first place. I really wish people would understand more..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/19/2008 3:06 PM (GMT -7)   
If I were you I would try to play it off as not mine. Like next time you see those guys be like "hey I'm expecting another shipment of my grandmother's diapers. I would hate for them to get rained on. Could you call me if you see them outside?"

But in all honesty, I feel your pain so much and send you a huge hug. It is nothing close to as bad but I gave way too much tmi out loud in class today. We were talking about OUI and the breathalizer and how the police have to restart the 15 minute wait period if someone burps. I said out loud "I could never go 15 minutes without burping... they would think I was doing a forced refusal..." And some people laughed, some people looked shocked, my professor looked embarassed... I really didn't think it was that big of a deal. I burp a lot. Whatever.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/19/2008 3:26 PM (GMT -7)   
Tell them they're for me. I won't mind (((hugs)))

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/19/2008 3:44 PM (GMT -7)   
Oh, Navy. I'm sorry. *hug*

I agree with LMills - some people really do need to get a life of their own instead of focussing on other peoples'.
Co-Moderator Crohn's Forum.

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 9/19/2008 4:08 PM (GMT -7)   
early times in my life (and this might only work because i have no butt whatsoever) I would use bigger toddles diapers as a liner. They catch most drop and it doesnt smash against your arse and make a mess. Its not foolproof but it really catches takes alot so you dont have to do the full diaper thing. Plus it just looks like your getting baby diapers.
SCD since 01, remission since 01, occasional Arby's breaks :)

Regular Member

Date Joined Jan 2008
Total Posts : 121
   Posted 9/19/2008 4:38 PM (GMT -7)   
Wow, I can't believe they would do that! College kids can be so silly. I'm so sorry. You shouldn't be ashamed though! Just be who you are and be strong.
Crohn's (diagnosed in 2006 and currently in remission), severe migraines, Seborrheic Derm., Hemolytic Uremic Syndrome (1994), chronic pain, ulcers/GERD and possibly Lupus. Medications: Nexium, Pentasa, Percocet and Vicodin as needed, Flintstone Vitamins (my favorite part!), calcium and magnesium supplements, vitamin D once weekly. I follow a low fiber, low residue diet.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 9/19/2008 5:03 PM (GMT -7)   
I agree with LMills and Ivy - they should get a life! Sorry you felt embarassed, although they should be the ones embarassed by their behaviour.

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 9/19/2008 9:58 PM (GMT -7)   
Screw it Navy, you know and we know you are a survivor, don't let this occupy another second of your time. Hold your head high and carry on!
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. Just finished prednisone taper. Udo's Choice Probiotics (30 billion).
Betaine, digestive enzymes, Candicin (oil of oregano capsules).

Regular Member

Date Joined Oct 2007
Total Posts : 235
   Posted 9/21/2008 10:43 AM (GMT -7)   
The humiliation we feel from this disease (and the snickers on the faces of those that would put such humiliation on us), would disappear into hugs of comfort, support and understanding if they had to live our lives but for a single day.
Just trying to be a "Regular Member".
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 9/21/2008 11:02 AM (GMT -7)   
You know the old saying what goes around comes around and it always does and always will navy. I wouldn't worry about those freaks. Some day they will be old and may need to ware those as well.
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

Veteran Member

Date Joined Oct 2005
Total Posts : 1250
   Posted 9/21/2008 11:21 AM (GMT -7)   
Just let it go. They will be wearing them someday! Sending big hugs your way.
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 8mg/kg every 6 weeks, Prednisone 10mg/day, (tapering Pred 1mg/month,) Miralax daily, Prevacid 30mg, Vit B12, Hydrocortisone enemas as needed
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/21/2008 12:03 PM (GMT -7)   
Hi My take on this just don't let others bother your determination to look after yourself. We shouldn't let others cheapen our need for something if we need it. Maybe you could apply for a crohn's commercial where in the real world people use what they need. Time heals all abuse or maybe some.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/21/2008 4:09 PM (GMT -7)   
If those guys ever say anything to you about it, tell them you purchased the diapers for them to wear on their heads cuz they have sh!t for brains.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 9/21/2008 4:59 PM (GMT -7)   
Go pb4...well said! So sorry you have to tolerate these idiots Navy. Our society is really screwed up you know!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/21/2008 5:15 PM (GMT -7)   
Would it be worth your while complaining to the VA, Navy, and asking them to wrap the package next time, so that nobody can see what's in it?

It doesn't matter how old or ill a person is - *nobody* would want to advertise that they are wearing those things - and I think the people who sent the package should have had a bit more sensitivity.

Another hug. You're having a horrible year.

Co-Moderator Crohn's Forum.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/21/2008 6:32 PM (GMT -7)   
Navy I am so sorry that happened to you. Sending (((BIG HUGS))) to you!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jan 2006
Total Posts : 135
   Posted 9/21/2008 9:52 PM (GMT -7)   
I too, feel your pain Navy.  with this disease i have grown alot.  I myself would have told them, that i have a disease, Called Chrohns,  that i hope to God they do not get.  be tough Navy.  Just let it go, kids will be kids.  Believe me i was one of them butt heads.  But age has changed me. 

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 9/21/2008 10:06 PM (GMT -7)   
I would complain to the VA. Medical conditions are private and confidential. It wouldn't matter if you were getting band-aids in the mail, medical supplies should be in "plain brown wrappers." Maybe your complaints will save someone else from the same embarrasment.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 9/22/2008 1:05 PM (GMT -7)   

Oh Navy, I feel so sorry for you....
I would also act like they were not mine. heck I still get embarrassed buying feminine products.... lol


I do think the box should have been blank and not so visible. I could not imagine them sending any other medical supply in a way that is was not confidential. When I get meds thru the mail the bag is very discrete since it is confidential. I aslo know how the military can be and they can care less sometimes with medical stuff. I once had a Navy Doc tell me I was pregnant in front of a room full of people. How did he know if I wanted strangers to know?



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 


Veteran Member

Date Joined Jan 2003
Total Posts : 6130
   Posted 9/23/2008 1:10 AM (GMT -7)   
dang i gotta type this again! i lost my log-in ...

anyhoo navy i have similar thing happen often, hope you get a laugh.. i get big boxes from the VA too. they like to send everything at once. the largest box they have is a clearly marked "urinary incontinance bags and tubes, large 100 each" in bright apple green 3 inch letters! now if you recall i was a mail man after i got out. and guess where my mail comes from? yep my old work place! boy do i get the ribbing when the "box" gets delivered. all in good fun though...

maybe you could pack some of the boxes with foam peanuts and send them to other people in your building. and then say gee did those pranksters get you too?


Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/23/2008 8:00 AM (GMT -7)   
blush blush blush

OH NO!!! (((((((((((((( Navy ))))))))))))) SO sorry. I don't think I would even have a clue . . . except that I went to the store to buy some adult diapers for my dad and I found myself feeling SO defensive about it. I can't imagine having to endure a bunch of college peers as in your situation. You are "true grit".

Randy had the very BEST response!!! Haaaaa Haaaaaaaaaaa!!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/23/2008 9:19 AM (GMT -7)   
Randy! Love the idea of sending the box on.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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