Posted 9/21/2008 12:50 AM (GMT -7)
This question was just posted on another Crohn's Forum that I visit occassionally but not a member of but it is a question I think about a lot.
Bascially it asks that if we are taking immunosuppressives for our disease that means our body has an overative immune system that we are trying to suppress with medications. Would it make sense to take vitamins and supplements to BOOST your immune system? Like trying to build it up and knock it down with medication?
I have taken fairly expensive vitamins for years, made and drank Kombucha Tea in the past and now drink Goji Juice (3 years) (neither of which I push or advocate has helped) just that I have always felt good so continued to do so when someone presented them to me. People thought I was the 'healthy' one, having not had a cold or flu for years.
Now that I have been diganosed with Crohn's last July in which they found a significant stricture in my colon, I am wondering if I did too much? One theory of mine is that I have had this for quite some time, it has been inflammation that has healed itself time and time again in the form of scar tissue (but they can't tell how much is scar tissue and how much is inflammation) without manifesting itself with usual symptoms of Crohn's.
I had issues 30 years ago with diarrhea and urgency at which time I went to a GI and remember drinking barium and bending over something that was probably a rigid sigmoidoscopy? Nothing came of it and symptoms disappeared. Would like to see my medical records on this but can't find them. Maybe I've had Crohn's for 30 years? If so I've had 30 good years, even now I don't have symptoms just restricted bowel movements and 'feeling' on left side of abdomen.
Diagnosis also came as a surprise since I am not fatigued. If I get 6 hours sleep a night, I feel I function normally, and that's not 6 hours straight, usually wake up a few times.
Anyway, these our my thoughts in the middle of the night and I am going to have my first methotrexate injection on Monday. Plan is to try it if for 3-4 months, another colonoscopy and surgery if no effect on inflammation. The anticipation is probably one reason why I am awake right now.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for the last 11 months. Starting methotrexate in mid-September.