Entocort vs Prednisone....

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Regular Member

Date Joined Aug 2008
Total Posts : 24
   Posted 9/21/2008 4:05 PM (GMT -7)   
I started taking prednisone a while back after fighting it for a month.  I gave in, he put me only on 20mg which was nice.  It took the pain away and I noticed abdominal swelling decrease.  YEAH!  He had me on 1wk at 20 then taper down.  Well, on day two of taper, the pain came back.  Mild at first then it hit me hard on Saturday (yesterday).  At my check up on Thursday, I told him the pain was slowly coming back (only took 3 days to hit hardcore though).  I had a FABULOUS week though.  :)  He prescribed entocort.  I wasn't at that point sure it was pain from something I ate (dried fruit and almonds rolleyes ).  I waited til Saturday to take it.  How long does it take for the entocort to take over?  I'm still at 10mg pred tapering for another week. 
Prednisone spoiled me for that week, pain free and very few side effects.  It was nothing like my last venture with prednisone.  I actually enjoyed it.  NOT that I want a lifetime of it.
*****I haven't been here in a while so maybe I should give some brief background.  I have endo and crohn's and I didn't know which was which.  I get pain, not the diareaha, so it is often ahrd to rule endo out.  The pain subsides for a short period of time during the month so to me it is spurred on by hormones.  It was coming in cycles, the same time each month for a while,  now it just stays.  I don't fit the "normal" crohn's mold and the Promethius test came back negative (5yrs ago).  My mom has crohn's and many in my family (history) have died due to intestinal issues so dang it it runs in the family.  I'm jsut glad to be alive NOW.  :)
Mom to 5 little ones.  First dx of crohn's in 2003 (while pg with #4), then it was changed to IBS.  2/08 I was rediagnosed with crohn's.  I also have endometriosis and am trying to distinguish between the two.
I'm currently taking Pentasa 4 2X daily 

Regular Member

Date Joined Aug 2007
Total Posts : 349
   Posted 9/27/2008 1:37 PM (GMT -7)   
I would think endocort would take a little longer to take effect, but I have never been on it myself. I would say if it has not shown any sign of working yet then you may want to call monday and let you gi know.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/27/2008 3:21 PM (GMT -7)   
Hi Shelley,

Ummmmm . . . not to make things even more confusing . . . but Chron's "can" worsen during the same time we have pms. Inflammation, in general, is higher. So those of us at the Lupus forum notice increased symptoms during that time too. Just a thought.

Has the gi doc seen inflammation in your colon/intestines? Would the prednisone help the endo too? Also, the entocort is released in the bowel . . . so if you don't have bowel issues, I wonder what the entocort is for????

Sorry its so hard to sort out this stuff.

I hope the entocort kicks in soon.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined Aug 2008
Total Posts : 24
   Posted 9/27/2008 3:39 PM (GMT -7)   
I have been gone out of town for a few days.
I saw the doc on Tuesday.  He told me to stop taking the entocort, it obviously wasn't working.  I did notice the pain letting up yesterday afternoon.  I am right around ovulation.  It did this LAST month too.  rolleyes    I'm more confused!
He told me he was goign to give me pain meds, but it was bentyl (?) which i think is more of an antispasmatic for IBS.  It took part of the pain away.  Who knows, maybe it is IBS not crohn's now.  My blood work was great...no inflamation. 
I don't know what it is yet.  I DO think it has something to do with hormones though.  Maybe I should go on some BCP. skull    Maybe I should have a scope done and remove the endo, I'm sure I have too.  Maybe.... or Maybe.....  I should jsut suck it up...many of you are worse off.  :D
I am enjoying my few days here of less pain.  :)
Mom to 5 little ones.  First dx of crohn's in 2003 (while pg with #4), then it was changed to IBS.  2/08 I was rediagnosed with crohn's. Most of my crohn's is int he sigmoid colon and decending colon.  I'm responding to crohn's treatment, so they say it isn't my Endo.  It is very hormonally charged though.
I'm currently taking Pentasa 4 2X daily 
3mg Entocort
weaning off small dosage of Pred.

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 9/27/2008 3:52 PM (GMT -7)   
You might consider a birth control pill that keeps you from having periods except once every 3 months or so. Right now, I'm on Yaz. It gives me a shorter, lighter cycle, which helps. I do notice some issues during my period.. constipation for a couple days and then free flow. Normally, it's about a 2-3 day process at most... Off the pill, it was more like 4-7. Almost debilitating. Now, it's shorter and MUCH more bearable...still need tylenol to get me through, but it's DEFINITELY better.

I considered the option of only having a cycle every 3 months (Seasonale I think?), but I'm still trying to bear children, so we're sticking with what flows best with my infertility treatments as well...

Endo and Crohn's are hard to distinguish. I have a family member fighting something similar. Still no definitive dx. I'm sorry you are battling all this....
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 9/27/2008 6:35 PM (GMT -7)   
I have a period twice a year on birth control for this reason. They tend to bother my Crohn's, and my PMS is terrible on top of that. I LOVE it.

Since little of entocort gets in to your system, I'm not real sure how it would have been better for me. I seemed to have inflammation going on in different places besides my intestines. So when I went in to a flare pred brought it all under control.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

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