When should you move on to another doctor???

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Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 9/23/2008 1:29 PM (GMT -7)   
I am so frustrated!  I have had eye inflammation from this DD for over a year now and I was seeing an Opthalmologist who basically couldn't help me any longer (he just didn't know what to do).  I recently saw a new one, and I am having some doubts.  I have called the office and they either don't call me back, tell me things I know are not true (ex: specific diagnostic test questions), or they do not get my messages right while I am on the phone with them. 
How many chances should you give an office before you move on?  I honestly do not know how much more of this I can tolerate as my eye continues to worsen over time.  I think this new eye doctor probably is a good doctor, but if I cannot get through the office, how will I ever get him to help me?

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 9/23/2008 1:44 PM (GMT -7)   
The very first time my eye doctor did not call back I would go to the office and ask to give the message to the doc myself. Then I would tell the doc his staff was messing up. That would be the last chance I gave them-after that if I did not get a call back I would find a new doc.

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 9/23/2008 6:09 PM (GMT -7)   
I'd say it's time to find a new doc. Like you mentioned - he might be a great doc - but if you can't get to him it doesn't really matter. This disease is frustrating enough, I'd go for an eye doc that doesn't add to the stress before you've even seen him.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 9/23/2008 6:25 PM (GMT -7)   
Eyes are kind of important. If the office screws up, it's not much of a problem for them, but what about you?

I think you answered your own question when you said "I honestly do not know how much more of this I can tolerate as my eye continues to worsen over time."

Find another doctor.

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 9/23/2008 6:45 PM (GMT -7)   
I would of moved on already.

I have a GREAT set of opthmologists! I LOVE THEM! They are a practice of 4 or so (everytime I go I meet another!). Anyway, ANY of them are HAPPY to see me. I had a retinal detachment PRIOR to my dx and they are now linking that to my Crohn's (Crohn's=inflammation of the body and a retinal detachment is inflammation in the eye that forces the retina away from the eyewall.)

Anyway, if I even START to see something funny, they bring me in right away. They were the ones who got me a surgeon within 15 min when they found my detachment. I saw 2 docs, 2 students, and several nurses at that visit and I couldn't see anything because I didn't have my glasses and my contacts were out. They were awesome. In addition, prednisone has caused me to have cataracts. Therefore, when I'm on Pred, they monitor me every 1-3 months and will put me on pressure drops if need be. The meds have been known to dry out my eyes too and they've been known to give me some great saline drops for my eyes as well.

I'm rambling, but move on..find a new doc. Your eyes are VERY important and this DD can GREATLY affect them. I was within hours of going completely blind in my left eye. The docs cannot believe they were able to save my vision and most are shocked at how well I can see out of it!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

Veteran Member

Date Joined Jan 2005
Total Posts : 1830
   Posted 9/24/2008 9:04 AM (GMT -7)   
Find a new doc NOW. This is exactly the situation/behavior from my former g/i when he didn't know what to do since I was failing on Remicade. So I took matters into my own hands and went to the nearest teaching hospital for a doctor. Is there an Eye hospital any place near you. I know here in Pittsbugh, we have Eye & Ear hospital and if I was in your situation I would go there.

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/25/2008 2:32 PM (GMT -7)   
Good job Kaycie! Never fool around with your eyes! They are far too precious.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

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