New to Forum-Pancreatic Problems w/Crohn's anyone?

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Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 9/25/2008 12:11 PM (GMT -7)   
I am new to the forum and I am so excited to read all the post and identify with so many of them!  Finally I've found somewhere with people who understand and know about my disease!!  I am 38 years old and have been diagnosed with Crohn's for 5 years, but have had it for 15 years.  I've been through all the treatments under the sun (5 ASA, 6-MP, Remicade, Humira, Prednisone, Re-Sections, and within last month Cimzia).  about 2 years ago I started having problems with my Pancreas.  I got Pancreatitis from 6-MP and ERCP.  Then I spent 9 months in excrutiating pain until they found a problem in the pancreatic muscle(sphincter of Oddi) and did a sphincterotomy.  A year went by with no Pancreas problems and then the same pains were back, but this time it was a Pancreatic Stone that they removed in one of the ducts.  My question to anybody is has anyone else had problems with their Pancreas and Crohn's or is this something seperate?  In all that I've read about Crohn's I've seen problems with joints, eyes, skin, and Intestines, but never anything on Pancrease. I can't wait to hear from ya'll. 

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/25/2008 2:19 PM (GMT -7)   
I have never had any Pancreas trouble myself, but I have a friend who was just dx'd and she has pancreatitus & pancreatic divisum. It is common with crohn's, unfortunately. Crohn's ahs a nasty habit of attacking every single aprt of your body. Nothing is sacred, adn everything is subject. Sorry I can't tell you it's a fluke!
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/25/2008 4:33 PM (GMT -7)   
Yes there is someone on here who has some problems with it hoping she"ll see your post. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

not creative
Regular Member

Date Joined Mar 2007
Total Posts : 469
   Posted 9/25/2008 4:40 PM (GMT -7)   
This is slightly OT...
My Crohn's actually saved my life from a pancreatic tumor! If I had never been diagnosed with CD, they never would have done the CT scan and subsequent MRI that saw the "shadow" on my pancreas. I had to have the tumor and 70% of my pancreas removed, with only 30% left I hope I don't end up with pancreatic issues.
Laurenne, 24 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, Lialda and Imodium

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/25/2008 4:54 PM (GMT -7)   
Hi Kimmy, I developed pancreatitis after taking 6mp. I had a couple of acute attacks, that unfortunately has left me with chronic

I hope your problem does not progress any further.

Best wishes,

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 9/25/2008 7:24 PM (GMT -7)   

I developed pancreatitis,we are assuming, from entocort.  It was the only medication that my GI guy could trace back to that might have caused it. I am not a drinker, no diabetes, none of the usual things that might have brought on the attack.  A week in hospital with nothing by mouth, and then another week after the ERCP with pancreatitis, and nothing was found to be the cause.  They then said I had chronic pancreatitis.  Since then ( 2003) I have a lot of pain in the upper part of abdomen, below rib cage, in middle.  Enzymes are checked periodically and are normal, but pain can still be intense!!

I hope you find some relief!!  It is just another problem that can be debilitating shakehead .

Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 9/25/2008 7:45 PM (GMT -7)   
Hey AKTeach,

You might want to talk to your dr. about sphincter of oddi dysfunction. I had to go from Fl to New Orleans to find a dr. to diagnose my intense pain under my right rib. It has to do with the pressure building up in a Pancreatic duct. The dr's over there measured the pressure during an ERCP and put a stent in. The minute I woke up in the recovery room I felt relief!! I don't know if that can help, but if you're like I was anything was worth a shot. I too am not a drinker or diabetic and was looking to this forum I found to see if I was alone. It's not bad enough that we have this lovely disease, NOW this too!! I'm new to this, but I am so glad to chat with folks like me!! Let me know if you have any questions, or just want to vent!!

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 9/25/2008 9:35 PM (GMT -7)   
It may not help to know, but the pancreatitis can happen as a result of the immune system attacking gut bacteria. The bacteria release something called endotoxins when they are killed. They pass through the gut lining and enter the blood. Endotoxins are very harmful to the pancreas and can damage it directly. If you drink alcohol while the endotoxins are present, the damage is much more severe. If you are in an acute phase, you can ask your Dr about polymixin B. That is an antibiotic that binds with endotoxins. That does not treat the source of the problem, but it may prevent more damage to the pancreas.

Veteran Member

Date Joined Nov 2003
Total Posts : 7314
   Posted 9/25/2008 9:43 PM (GMT -7)   
HI Kimmy and Welcome. It sure is a great feeling to find yourself among others who really do understand. This is a great community and I've made some very good, life long friends over the last few years. Our members are very friendly and most willing to share their experiences, thoughts, hopes, fears and problems. We help one another get through the rough times and I hope that you find HealingWell as beneficial as I have.

As you can see, you are certainly not the only one who has developed Pancreatitis. Though I've been spared that problem, I did discuss it with my GI while we were talking about possible complications. I'm sure you've read the "general" Crohn';s information where the quote is something along the line of "Crohn's can affect any part of the digestive system from the lips to the anus." Unfortunately, that includes the pancreas. The risk of pancreatitis increases when we add the immunosuppressants to our meds.

I hope that your Doc is able to help you get and keep this under control. I know that pancreatitis can be very painful. Until it resolves, I'd suggest that you consider seeing a Pain Mgmt Doc to help with the rougher days. I know I wouldn't have made it this far without the help of my Pain guy.

Be Well.
Keah a.k.a. Wormy
 God helps those who help themselves.
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Crohn's Forum Moderator

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 9/26/2008 9:38 AM (GMT -7)   
Hi Kimmy and welcome to the site. I'm another one with cronic pancreatitis. I was put on a drug that shut my pancreas down for a year and I took enzymes to replace what the pancreas makes. It helped me a great deal and the enzymes were easy to take. You just take them with food. I have to say that when the pancreas has trouble it is one of the most painful and nauseating feeling I have ever had. Hope you feel better soon and may you have no more trouble with it.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

New Member

Date Joined Jan 2013
Total Posts : 2
   Posted 1/29/2013 2:48 PM (GMT -7)   
I am new to the forum well... new to forums in general. I don't know what I am doing other than looking for someone/something that can help me understand all that I am going through.  I saw a post about pancreaus and crohns.  I had a blockage in my bial and pancreatic ducts, I had an ERCP and a sphincterotomy.  My pain prior to all this being found was so bad... unbearable!! I then found out that I have cronic pancreatitus.  My pain was so bad I finally had a pain pump put in November 8th.  Still have pain and lots of pain when I eat but not near as bad as it was! Now... I just found out that I have crohns.  I don't even know that much about it! I feel like my ab/tummy is nothing but a big pain center.  Before I got my pump I had lost down to 104 lbs, I have gained up to 117 since then.  I am just so lost and confused with what is going on in me! Dont know what to do.  I hope that this site can help me understand what is going on! I do have an appointment with a specialist on Feb 5th.  Got a lot to learn and to deal with.

Veteran Member

Date Joined May 2012
Total Posts : 3319
   Posted 1/30/2013 8:25 AM (GMT -7)   
This is a really old thread, Tracey; you might want to start your own thread so more people will see it.
CD 2010, Fistula, Pancreatitis, C. Diff.
Current: Remicade
Previous: Prednisone, Imuran, and Asacol

"These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world." John 16:33

New Member

Date Joined Jan 2013
Total Posts : 2
   Posted 1/30/2013 8:29 AM (GMT -7)   
Thank you! New at this!
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