After my first remicade infusion, felt a sense of improvement in terms of reduced number of D the next day. Within 6 weeks, formed stools for the first time since diagnosis. Unfortunately, had a reaction during the 4th infusion, with difficulty breathing, increased heartrate and extreme abdominal pain, which coincided with an attempt to taper the prednisone.
Was then switched to Humira, which had even better results for me, until it stopped working. I had no major side effects from the Humira, aside from mild swelling/irritation at the injection site and slight fatigue.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade, weekly Humira
Late 7/08, down to 5 mg pred, and big flare, Humira failed
2 week hospitalization in 8/08
Now on Pred 25 mg, cyclosporine, percocet, xanax
Surgery scheduled 10/10/08 to get rid of this colon