Hey everyone, I hope you are all doing well or as well as you can be! We met with the pediatric surgeon today and he feels surgery is the best option for Sierra as well. (That makes 3 Dr's) She hasn't tapered off prednisone completely. They want us to try to do it quicker, 5 mgs every 5 days. I hope she can handle that - she is down to 20 mg and isn't feeling fantastic. They scheduled her surgery for 10/17. I hope I win the lottery between now and then. The surgeon set up a payment plan for his fee ($5,500). That is only his fee though, not the hospital, etc. I hate that we have to worry about the finances. Her health is most important and certainly doesn't have a price tag but medical bills have really become a burden. He said he will try to do it laproscopic (sp?) but isn't certain until he gets in there. He believes she is going to feel so much better. Oh how I pray she will!
Sierra is actually looking forward to surgery. She says she will take whatever relief she can get! I am very nervous! Please keep her in your prayers! Much love and laughter to all of you!!!!!
Oh, Sierra got her drivers license and is so excited about it!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07- she had surgery for abcesses 11/07. She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa 500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3