Question for the ladies....

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Regular Member

Date Joined Apr 2007
Total Posts : 165
   Posted 9/29/2008 9:49 PM (GMT -7)   
First of all, all you MEN that are reading this....  Dont say I didnt warn you...   I am about to get a little graphic....
Yeah so can somebody tell me if I am supposed to have oh hmmm, I am trying to word this just right...    Okay, here goes nothing...   Uh am I supposed to have a hole in my who-who?   I mean YEAH I know I have the love hole, the pee hole, the bartholin gland holes...   But....    I checked my junk out tonight and I see a NEW hole...   Its small, about the size of a pencil lead, its right under my love tunnel hole...    
Oh, I was not just looking at my va-jay-jay for the heck of it...   I have had bleeding (spotting) from my crotch almost every time I have a bowel movement.   Oh and since I am just letting everything out, I have had dampness in my undies...   It smells like pee!   or something....
So, I called my gyno today, I cannot get in for like 2 weeks....    
I guess I am asking for your opinions...    Should I just wait the 2 weeks and see the gyno, or should I talk to my GI about it?    Its my crotch, not my butt...  So, I dunno if this is the GI's area of expertise...
(PS, my honesty is my best and worst quality...   So I am SORRY if I offended anybody)
PSS...Guys...   I TOLD you this was going to gross you out.....
28 Yrs
Newly diagnosed with Crohns

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/29/2008 10:12 PM (GMT -7)   
It sounds like a fistula. I had one before but it was fixed with a heavy dose of antibiotics and steroids via IV after I had an ER surgery done. They do tend to leak so until you get it treated maybe try pads for light flow? Just make sure and keep an eye on it until you DO get something done. I would make sure and keep mine drained and dry. I also would apply a small amount of antibiotic ointment after each time I cleaned it--several times a day. You might want to try talking to your GI as having a fistula can be an indicator of the severity of your disease and may indicate need for new treatment. My GI said mine showed the severity of my case so we had to try some new things to make sure it didn't happen again.

Anyway, it isn't gross. Things like this just happen with this disease. You can say anything you want on here. I'm pretty sure most of the members here have heard it all so be as graphic as you need to be!!! :)

Hope that helps in any case.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/29/2008 10:27 PM (GMT -7)   
Sounds like a fistula to me as can you not be graphic, this disease is so ugly, it's bad enough that it is what it is but for it to mess around in other areas as well is just plain should see if you can get in to see your GI sooner than your gyno, there's a good chance your gyno will just end up sending you to your GI anyway.

I hope you feel better soon :)
My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Apr 2007
Total Posts : 165
   Posted 9/30/2008 6:08 PM (GMT -7)   
So I called the GI today, he thinks it sounds like a fistula....   But he needs to confirm.    He started me on antibiotics too....
So, do I have to have surgery if it is indeed a fistula?
28 Yrs
Newly diagnosed with Crohns

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 9/30/2008 6:31 PM (GMT -7)   
I agree it sounds like a fistula in the perineum. I have a peri-rectal fistula. And I agree that the GI Doc is better or even a colo-rectal surgeon -- just make sure they are experienced with CD.

There are treatment options depending on the track of the fistula, meaning where it starts and where it empties out. I have 2 setons in mine to keep it open so it won't clog and abscess. Surgery is sometimes an option but not always. The antibiotics are good for now. If you get a fever or feel a lump down there, call your Doc and demand to see him/her immediately because you could have an abscess. I'm praying you don't get one and it heals quickly!!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 9/30/2008 6:31 PM (GMT -7)   
I agree, that's what it sounds like. There are medications they try first, to see if they can close it. There are surgeries (I had a fistulotomy to close a rectal one). But I know they'll go all the medication routes usually first. Since healing isn't exactly a feature that comes with these very well, after surgery (mine took a year to heal up).
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 9/30/2008 6:44 PM (GMT -7)   
Agreed - Fistula. I've had 3 - One started as a 2" x 2" abscess that was emergency lanced in the ER (god that hurt!) under a tad bit of morphine and numbing medicine. It drained and turned into a fistula that channeled from my rectum to the lip part of my hooha! ;) Then, I developed one about an inch from it and then one in the perineum. Yours sounds like it's in the perineum.

Def call the GI and get to see him. Antibiotics typically stop the mucous and slow the blood. You shouldn't need surgery. They want fistulas to heal from the inside out. Some surgeons will do surgery on them, but most advice as it's not a pretty surgery.

Like others said... if you get a fever or feel it get hard and sore or tender, call, it might mean it's become an abscess, which can happen VERY easily. Keep the area very dry and clean. I always wore a pad. Let it drain, don't try and put ointments on it, you want all the junk to drain out.

GL! I hate fistulas!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

Veteran Member

Date Joined Sep 2007
Total Posts : 565
   Posted 9/30/2008 8:23 PM (GMT -7)   
i am so sorry you are going through this but i can not help but laugh at your very technical terms you used!! it just struck me so funny!

best of luck to you!!!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 9/30/2008 8:28 PM (GMT -7)   
I love the word "love hole"!!! Never heard that one before.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 9/30/2008 11:46 PM (GMT -7)   
love hole, baby hole.

My bum is broken....there's a big crack down the middle of it! LOL :)

New Member

Date Joined Jul 2008
Total Posts : 3
   Posted 9/30/2008 11:53 PM (GMT -7)   
Dear Curly,
I am not grossed out...maybe because I am a woman or maybe because I have had many issues myself lol.  I have gyn problems and Crohns's and my GI has been helpful about my gyn issues at times and my gyn has been helpful about my Crohn's.  The bowels and uterus are right by each other.  Whenever I have a procedure or something important done I consult both of my doctors about it.  Sometimes one issue triggers problems with the other.  I find my problems often can go hand-in-hand.  So go for it and ask your is worth a try.  It works for me.  Good Luck!
Diagnosed with Crohn's 2008
Have had symptoms my whole life...always horrible stomach pain and bathroom "issues" for as long as I can remember!
Disease is moderate but flares can make my life miserable while they last...
Stress and lack of sleep make my Crohn's unbearable also...
Exercise and a healthy diet have no effect on my Crohn's...
Medication: Pentasa...must take Vitamin D and getting ready to start IV Iron Therapy due to low iron count due to Crohn's.

Regular Member

Date Joined Apr 2007
Total Posts : 165
   Posted 10/5/2008 4:29 PM (GMT -7)   
So I have an appointment to go to the GI on Thursday.... I am ready to go and get this show on the road... If it is a fistula, fine... But I want to get it fixed. I am a single girl out on the prowl and I cannot have my who who out of commision... Just in case opportunity knocks.
Oh and the best part, I think I am supposed to get my period this week... I hope I get it tomorrow, cause otherwise I will still be bleeding on Thursday and I will have to move out my appointment.... I am just ready to figure out what the heck is going on in this hallway of mine and ready to get it fixed!
28 Yrs
Newly diagnosed with Crohns

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