always cold/low body temperature?

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Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 9/30/2008 3:57 AM (GMT -7)   
Earlier this year (from january til june) I had a flare up of my Crohn's after 3 years remission, I had a remicade treatment in june (maintained with methotrexate 25mg once a week) and have been better since but since I was ill I've been struggling with low body temperature which doesn't seem to improving e.g. last night my temp 35.5c and this morning it was 35c and never seems to go much above 36c. I am always freezing and driving my housemates nuts as I turn the house into a sauna and am still cold! I was just wondering if anyone else has low body temperature or knows what could be causing it? According to my bloodtests there is no active disease and I have been well for 3 months now, any help/advice would be great thankyou!
20 yr old female. Diagnosed with Crohn's Disease 2002
Crohn's arthritis in fingers, wrists, jaw and sacroiliitis
4 1/2 years remission with methotrexate and occasional infliximab!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/30/2008 7:18 AM (GMT -7)   
Could you possibly be anemic? I am anemic and I am cold alot. As for the low body temp, I think many Crohnies run low most of the time. I am in the US and my temp is usually around 97.4. Thats my normal, I know I have a temp when it gets to 99.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 9/30/2008 7:35 AM (GMT -7)   
I've had Crohn's for so long I can't remember BC but I do know for YEARS I've been "colder" than most people. If it is hot for a sweatshirt, it is too hot, and, if it is too cold for a sweatshirt, its too cold! I run around comfortably in a sweatshirt and bluejeans when others are running around in T-short and shorts! In the car I prefer open windows to the AC. If its too hot for open windows then I need a long sleeve shirt and the AC at its mildest settings or a sweatshirt whilst everyone else in the car w/the AC barely cool enough for them. Another interesting phenomena is that often when I eat a full meal I get CHILLED, COLD, so cold and chilled I have to don a sweat suit and climb in bed under covers and a down sleeping bag. BEFORE I started Imuran in 2003 my "normal" resting temp was 96.4 to 97.6 and it still is.

All that being said: when I was in ER one time and they took my temp and the nurse said my temp was "normal", the ER doctor said that since I was on an immunosuppressant it kept my temp down. Another time in ER when the nurse said my oral temp was "normal" the ER doc ordered a rectal temp. UGH! Not my favorite idea!! My rectal temp was 104.8!

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Regular Member

Date Joined Dec 2007
Total Posts : 131
   Posted 9/30/2008 8:13 AM (GMT -7)   
I'm always freezing and completely intolerant to cold. The worst part is I go to bed with lots of covers on because I'm cold, and I end up having night sweats. One of my family members has been wearing shorts and short sleeved shirts and bare feet AND has a fan blowing on him all the time. I'm walking around in jeans, t-shirt, sweatshirt, socks and wool slippers and I'm still cold. It drives me nuts!
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
No meds at this time. (Don't agree with me.)

Regular Member

Date Joined Feb 2008
Total Posts : 71
   Posted 9/30/2008 8:45 AM (GMT -7)   
if you always feel cold, wouldn't that mean your body temp is elevated?

i dunno about you all, but when i get a fever i feel cold because my body temp is warmer than normal.

my body temp is consistently lower than normal by a few tenths, and i'm ALWAYS hot. i'm only 5'7 and 125lbs and i'm rarely cold.
.:brad:. 23 year old male from PA.

diagnosed with crohn's disease in april 2002 during surgery for obstruction
meds: 10mg prednisone, tapering. starting remicade july 30th. no more 6MP.

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/30/2008 10:02 AM (GMT -7)   
I feel cold alot. My normal body temp is 97.7. My feet & hands get especially cold. And no, when I get cold my temp is usually normal.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 9/30/2008 10:27 AM (GMT -7)   

Ditto, ditto, ditto, I have had low normal body temp for years, usually between 96.5 and 98.  When I get to 99 I am really ill.  It is hard to convince the health care providers that 99 or 100 is high for me.  When they see labs out of whack then they finally believe me!!!

This past 6 months I have run at least 100 temp every day, not all day but at least during part of the day, this is how I know I have some flaring going on.  I have been on pred. since June after my first hosp. visit and am still on 10mg.



Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 9/30/2008 4:10 PM (GMT -7)   
You could have a low percentage of body fat, which would explain feeling cold all the time! Especially if you're a skinny Crohnie...I know I'm freezing my arse off all the time, I carry a huge sweater around with me and all the desert-dwellers look at me like I'm nuts.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 10/1/2008 5:08 AM (GMT -7)   
I most always feel cold, except when I feel well enough to do physical labor, or am out in the Oklahoma 100 degree summer weather. Like the many of rest of you 99 is the point where I search out my Doctor (I am notorious for avoiding them) This seems to be my out of control, SCD and supplements are not doing the job right now get help fast point. I also have rather low blood pressure, and this is a factor. I too cover up at bedtime and kick those 5 blankets off, but when it is one then the other, over and over, there is usually a problem/fever. I have also noticed if I get dehydrated, then It gets worse. I think this causes the BP to further drop,because at the labs sometimes they ask me to drink/force fluids so they can get a BP reading and draw blood (I just refuse to give it up). Most ER Docs in my area freak out and sent me to the GI Doc, after they give me some big gun antibiotic script. I think they know this may send me into a flair, and want to make sure a GI follows up. When I have infection, my BP looks fairly good so ER Docs don't usually panic, but if I don't get treatment soon the BP steadily drops, and then I get the first class inpatient treatment. 

Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reiters-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

Just Wondrin
New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/4/2009 2:28 PM (GMT -7)   
If your body temperature is consistently low, check out Wilson's Low Thyroid Syndrome. My temperature is always 97 or below and I'm having all kinds of symptoms that are like thryroid, only my blood tests are "normal". A low body temperature is just as dangerous as a high temperature. I had stumbled across the Wilson's site and didn't pay it much attention till my doctor said that's one of the major things wrong with me ( in addition to Hep C, I might add). My brother has Crohn's and his temperature is always low, too.

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 1/4/2009 5:30 PM (GMT -7)   
CrohnieToo....very interesting about being on immu. and oral temp....I'm going to remember that. Every time I had an abscess they were SO shocked that I never have a temp.

I am always cold also. My wonderful husband bought a heated mattress pad (not blanket) and it has made a world of difference! I no longer need 2 blankets and a down comforter at night. I turn it on preheat when the kids go to bed, and it is nice and toasty when I'm ready to hit the sheets. It has dual controls so hubby can be comfortable also. If you don't have one of these I highly recommend it!

Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 1/4/2009 11:27 PM (GMT -7)   
Always feel cold but average temp except at night. I wear long john thermals, complete set of pajamas, two pairs of socks, a thick hoodie sweatshirt and thick pants. I usually am seen wearing two wool hats as well on my days off. When I have to work, I know its going to suck 'cause I gotta shower (usually saps what strength I've got), and subject myself to cold in jeans and long johns and a sweater.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

Regular Member

Date Joined Sep 2006
Total Posts : 101
   Posted 1/5/2009 5:11 AM (GMT -7)   
I always feel cold after food - Lunch and Dinner. May be because of low Vitamin D..
Male India 45 years Diagnosed CD in 1990 Fistula surgery 1988
Mesacol Iron Folic Acid B12 Omega Diagnosed MVP/MR in 2007 Dilitiazem Dothiepin

Regular Member

Date Joined Mar 2008
Total Posts : 176
   Posted 1/6/2009 4:16 PM (GMT -7)   
I am nearly always cold, even when others are complaining of being warm.  I've always been that way, though, even before CD.  I have noticed, however, that over the past few years my normal body temp dropped to around 97.7.  Like some of the rest of you, when I have a temp of 99, I'm feeling pretty darn bad!!  All of the typical blood tests for thyroid (TSH, T4, T3) show up as normal.  Feeling cold most of the time is also symptomatic of anemia.
53 year old female;
Have had Crohn's of terminal ileum for over 8 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 1/6/2009 9:23 PM (GMT -7)   
One theory is that the blood supply tends to migrate to the core of our body's to aid digestion. I would think this would be more common in the Crohnies like myself who have very low blood pressure in addition to lower than average body temps. I also hear frequently of people who have normal or low oral temps and raging temps when taken rectally. Makes sense to me, that is where the inflammation is, after all. 
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 1/6/2009 10:20 PM (GMT -7)   
I was always really cold when I was severly anemic. Otherwise no.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure).

Regular Member

Date Joined Feb 2005
Total Posts : 421
   Posted 1/7/2009 11:21 AM (GMT -7)   
I am in a severe flare up right now, and though don't visit this site often, when I do I always cry and nod in agreement with people's posts. I am anemic, always cold. It's an inside joke to friends and family that "when it's 90 degrees outside, just hold onto Allison's hands" I cannot stand a/c in the car and on days when it is so warm (not too often being that I am in Edmonton, AB, it's currently -31 here today) that my husband HAS to have the a/c on in the car, I take my own (a convertible so I can feel the warming effects of the sun) even if we are going to the same place! I am looking forward to the hot flashes that menopause is suppose to bring....even though Im only 31!! ACK!

RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."

Veteran Member

Date Joined Dec 2005
Total Posts : 544
   Posted 1/7/2009 11:58 AM (GMT -7)   

Up until the crohns took hold of me back in '99 I for the most part was always warm or hot.  My temp was normally 99 to 99.5 degrees and I rarely needed a jacket even in the winter (Of course I live in Florida so that helps)

But ever since the crohns hit I have noticed that I get cold very easily ...and where B.C. (before crohns) my wife would ask me to hold her hands or rub her feet because she was cold and my hands were always my hands and feet are always cold. I seek her out because she has warmer hands. My body temp now averages 96 to 97.

Part of this may be caused by the loss of my body fat and muscle.   For some strange reason my blood pressure has also dropped through the floor.  BC my blood pressure was on average 110/120 over 80/85 and now I am usually about 100 over 65 or 70.  My pulse rate as well has dropped an average of about 10 beats.  So I figure if the blood isn't coursing as fast I am going to get colder easier.

dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 1/7/2009 12:33 PM (GMT -7)   
Like most of you, I am always very cold. My hands, lips and feet turn purple really fast when I am cold too. I usually have to wear layers. Also, whenever I feel really sick, my temperature is 99.
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 1/7/2009 11:08 PM (GMT -7)   
   OK, so I have given this issue some notice. I am a fifty year old female. I live in a mild climate, Oklahoma City is in gardening zone 7. The last few days I have realized that just as I finish eating, I have hot flashes. I have suspected a issue upon the emptying of my stomach for several months now. I also have night sweats at 3:30 every A.M. I've wondered for a few years now if my last evening meal is passing the area of the TI (where my known issue is) at about 3:30 A.M. The remainder of the time I am dressed in many layers, and seem to be 10 degrees colder than anybody near me (with the exception of 2 co-workers who are in their late 60's-70's one of whom is anemic which I am not yet), or under the electric blanket , a wool blanket and flannel sheets. I have always had cold hands. My oral temp runs  94.7, gotta remember to check that just after I eat. I have had two BP readings in the last month that read 110/80, but 85-90/65-70 is usually closer, and has been all my life pre CD and pre menopause. I'm going to look for a correlation between the rise in BP and meals too, and see if my BP rises or drops right after meals. This makes me think that my cardio / vascular system is under stress from my Digestive processes. My Father had major Cardio / Vascular issues, was a patient of Michael DeBakey, and never weighed more than 165lbs at 6'6".I have had few other Peri / post menopausal symptoms, some grumpiness, moodiness, low back pain. I don't know how many of those issues are the result of Crohn's / reactive arthritis, and chronic pain. The OB/GYN who made my initial CD diagnosis, said you could not separate the two, and many patients with mild / moderate CD go into remission after menopause, then remain in remission through the remainder of their lives.Sigh... I hope that is me, and the arthritis goes into remission too, it is by far my the symptom affecting my quality of life. I had many Crohn's symptoms through out my life prior to being DG with CD, and many seemed to be related to hormones.


    My guess is that there are several mechanisms at play that affect our ability to control our body temperature, in addition to heat generated by inflammation in the core of our bodies.


   Sorry this post got so long. May quality of life be on our side, and remissions come for us all in this New Year and beyond!


              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/8/2009 3:36 AM (GMT -7)   
i think it's the crohn's....i am constantly cold..i live in australia and it gets hot in summer and i'm always in pants and people think i'm crazy.....but i'm pretty much always cold...if my blood count is down i feel like i am freezing to death!!!!

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 1/13/2009 5:49 PM (GMT -7)   
wink  Ahh, This is why my husband calls me the Ice Queen!

              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

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