Ok, Here's my story in a nut shell. And I need help, please. I've had Crohn's for about
17 years, but actual diagnosis came 10 years ago (why does it take them so long while we suffer in the dark??) I am 31 years old with a 16 month old daughter (pregnancy was the best thing EVER!! total remission) I have been in the ER about
15 times with severe flare ups: pain, bloating, cramping, vomiting hell. I'm the type that waits until the sun comes up and I can't even walk or talk to finally go to the ER b/c I freakin' HATE it. Well, I do love the point when the opiates hit you and you just fall apart with joy. But, then come all the tests and the same old, "You have a serious bowel obstruction in need of surgery!"
I have 3 major strictures, never had surgery (I'm terrified) My GI has been pushing for it for years. I'm in a major flare that won't go away!! See, I can usually bounce back from a flare in 6-8 weeks with diet. Not this time. It's been 8 months of hell. I just had a colonoscopy and the scope would not fit into small intestine, even a baby scope b/c it is too inflamed! I look like a skeleton, have become anemic, night sweats, fever, elevated wbc for months, pain with everything that crosses my lips.
This is a good time to add that I HATE western medicine and I refuse drugs. The only thing I take are natural supplements and tylenol. I'm a hippie at heart and I believe that whatever drug they are going to give me I will eventually be addicted to or dependent on and I'm over it! I know this from experience because I have taken them all and been addicted to them all: Remicade, Asacol, Prednisone, Flagyl, Cipro, Donatal, Vicodin, Percoset, Norco, Loritab, you name it and I have been heavily addicted to opiates and now free of them. I feel I'm worse off for taking all of it. I'm sorry if this offends anyone, I'm just telling my story and how I feel. And I definitely don't ever pass judgement on anyone who feels otherwise or who needs and uses these drugs.
I've turned to God lately to take my pain away, helping a little...Also trying alternative infrared sauna every other day to sweat out toxins, kangan water, hyperbaric chamber... I'm desperate. I'm ANTI-antibiotics because I believe that a lot of symptoms are from candida. But, I KNOW I have a seroius infection right now because I can barely walk and feel like there's a watermelon stuck in my colon. I've been on the SCD diet, anti-yeast diet, liquid diet. It all helps a little but at the end of the day I'm still miserable and sick and can't sleep! I'm sick of carrying the cross around on my back with refusing meds. I guess I just need someone to listen and tell me it's ok to take the the Levaquin that my GI prescribed that I've been staring at for 2 months. Any advise or love for me? Thank you for listening to this long post.