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Regular Member

Date Joined Oct 2008
Total Posts : 88
   Posted 10/2/2008 11:13 AM (GMT -7)   
 Earlier on in September, I had a colonoscopy done since my diagnosis in Feb. of 2005. My gastro doctor recommended me to have surgery because of the narrowing of my ileoccecal area. Before I went to have my colonoscopy I weren't having any bad symptoms or flare ups. Right now im schedule to go into surgery on Tuesday. cry But since I had my colonoscopy there has been a lot of D and there is pressure in my lower right abdomin area below my belly button. Im really apprehensive about having the surgery, I had to call my surgeon yesterday for some reassurrence, he seems like a good doc. But my anxiety is building up, as to I don't know what to expect. Can anyone who has had surgey walk me through on what to expect from prep all the way through to recovery. I found myself breaking down into tears sometimes and the only way i find comfort is to read a couple scrpitures from the bible, which helps rebuild my confidence about the surgery. Im really nervous can anyone please help me into what i should expect. Oh and how was the pain afterwards. mad I need help from my fellow crohnies. Please hep me before I back out, I know this needs to be done, becuase the bleeding has not stopped and im in progressive state of anemia. Does the surgery really help? confused

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/2/2008 1:00 PM (GMT -7)   
Hi Welcome glad you joined us, Yes the surgery really helps and those are sad little tear drops. It is not as scarry as it seems . I sort of had a umplanned surgery so I did have the scope done and of course a catheter.,The pain was not bad at all I had a epidermal inserted into shoulder which was just like a little IVand was done when I was asleep they took it out after 2 days .I was up in chair the next day and giving myself a full sponge bath, and then walking. I did have a NG tube put in while I was sleeping no big deal I didn't even feel it except the tape they put on your nose is itchy which was bothersome but not uncomfortable. The incision was not that bothersome either had staples put in. I was out after 6 or 7 days so time went by really good that is a lot shorter then when I was in for obstructions .Don't worry I'am sure you"ll do great,lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/2/2008 1:31 PM (GMT -7)   
I have had two resections done. Both were open surgeries. I will not lie it did hurt afterwards, but they give you good pain meds. Be sure to ask for a pain pump, that way when you need the pain medication you can just push a button and the medication will be run thru your IV, no waiting for the nurse to come. After a few days they will start bringing you regular food, try to stick with softer blander foods, don't rush to eating regular foods. Also, after a day or two when your bowels start to wake up you will start having more urgent D. You might ask to have a portable commode next to your bed so you don't worry about getting to the BR. Don't worry this will go away in a few weeks as your bowels adjust to the change. Very important to walk as much as you can as soon as you can. This will help your recovery go smoother. I was in the hospital for 10 days each time because I got an infection in my incision afterwards (thats why its good to do a prep before the surgery).

Hopefully you will have your surgery done via laprascope. The recovery with that is supposed to be smoother. Its natural to be anxious, you might even ask your doc for something to help with that in the meantime. No need to stress yourself out.

I pray you surgery brings you to a long long remission and gets you feeling better soon. Good luck and let us know how it goes.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Jul 2007
Total Posts : 73
   Posted 10/2/2008 2:22 PM (GMT -7)   
HI, There's not much more I can add other than it may take longer for your bowels to wake up. I was so scared the first time. Mine took 5 days to wake up, but eventually it will happen. Other than that, it's really not so bad. Both of mine were lapro. Had a pain pump both times. The second time I didn't even use it after the second day. You do have to walk, a lot, but don't push yourself once you get home. you need time to heal. Good luck. Try not to worry.
Munchkin 81
27 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
Resection 11/07
Resection 4/08
on Remicade

Regular Member

Date Joined Jun 2008
Total Posts : 125
   Posted 10/2/2008 5:43 PM (GMT -7)   
Here was my experience with my bowel resection (it was an open surgery).

The prep is really no different than prep for a colonoscopy

The day of the surgery, I was given some meds that made me drowsy, so they could give me an epidural (to help with the pain after the surgery). After the epidural (which I did not feel at all), they put me under....I woke up in recovery feeling like I was going to puke. I guess the drugs does that to some people. It seemed to go away quickly - the nurse put something under my nose to smell which stopped the nausea immediately.

Then I was brought to my room....being lifted onto the bed hurt. The first few days after the surgery, it hurt to do anything - laughing, peeing, coughing, walking, sitting etc...but the whole time I was given heavy duty pain meds which made the pain much more bearable.

Each day the pain is a little better and within a few weeks, it just feels sore (like you have done 500 crunches)

Truly, this was not as scary as I thought it would was well worth it as it kicked me into a 4 year remission.

Good luck and keep us posted.
35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel

Regular Member

Date Joined Feb 2008
Total Posts : 132
   Posted 10/2/2008 7:23 PM (GMT -7)   
I can't give you a walk through but can offer you compassion. I'm glad to read this post as we are facing the same questions, anxieties, fears, etc. If you know what to expect, it gives a little piece of mind. My daughter is scheduled for surgery the 17th. I am completely petrafied. She doesn't seem scared. She is looking forward to feeling better. I hope everything goes well for you and I hope you have many years of remission! You will be in my thoughts and prayers! Much love and laughter to you!
Dx w/UC in 2001 - controlled by diet.
Mother to 15 yr old daughter dx w/CD 9/07-  she had surgery for abcesses 11/07.  She is taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, prednisone 10mg-x6, 6 mp 50mg-x3, Flagyl 250mg-x3

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