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Regular Member

Date Joined Sep 2008
Total Posts : 91
   Posted 10/3/2008 5:50 PM (GMT -7)   
I've seen several mentions of eye trouble with Crohn's, but I would like to know specifically what kinds of trouble ya'll deal with.  I keep getting red, itchy eyes that I thought might be pink eye, so I put antibiotic drops for a few days and it goes away.  It keeps coming back, so I don't know if it's something different.  They also feel burny(if that's a word).  Just like to hear some feedback!  Thanks.
diagnosed CD '03 after suffering for 10 yrs.
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade)
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, to many pain meds to list
Currently on-Cimzia, Cymbalta, and Klonopin(RLS)

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 10/3/2008 6:05 PM (GMT -7)   
Interesting. I've been on humira since 7/1 and started getting really dry eyes in mid august. My left eye had a good deal of redness that left when I had a few days of cipro for a uti.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 10/3/2008 6:38 PM (GMT -7)   
I've had a retinal detachment (vision threatening - required emergency surgery) that is be contributed to my Crohn's. No other reason it should of happened. I go to a fairly large practice of opthmologist and they are pretty certain the Crohn's did cause it.

Also, whenever I'm on Prednisone, I develop cataracts. Already have slight ones from the first time I was on Pred, this is the 2nd time. My eye pressures increase which is what causes cataracts. They have to put me on pressure reducing drops and check me every 4 weeks until I'm completely off steroids. Frustrating, but definitely something that you can work with. Steroid-induced cataracts go through your central vision, so it's nothing to mess with. And, it's not the AMOUNT of pred you are on. My opthomologist informed me if you are prone to eye pressure fluctuations that lead to cataracts, then even a measily 5mg can increase your pressures. He told me as soon as I'm on Pred, I need to be seen because I have a history of this.

I encouraged ALL of those of Pred to go and have a simple thing done where they check your eye pressures. Don't go to an optomemtrist, go an opthamologist. They have better equipment to get your exact pressures checked. You just don't mess with eyes on steroids!

Oh, and FWIW, my eyes are very itchy and irritated on the eye drops... Never had trouble on other meds though...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 10/3/2008 6:59 PM (GMT -7)   
I have had eye issues that according to my doctors is related to my Crohn's.  It is due to inflamation behind the eye--I was treated with eyedrops. 
My family doctor said I would just be more prone to have in inflamation behind the eye and as long as it could be controlled then to think of it as another side issue. 

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Asacol 400mg 3 tablets 2X daily, Prilosec 20 mg 2X daily, Probiotics, Calcuim/Mag/Vit.D. garlic and Vit. C 500mg daily

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/4/2008 4:59 AM (GMT -7)   
Hi in the spring I had what I thought was pink eye too although I was not on Hum .I had to get a perscription for antibotic for eyes,night cream before bed or at least I called it cream and a drop to help with dryness . I got really depressed about it but it went away. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still gail

Regular Member

Date Joined Feb 2008
Total Posts : 165
   Posted 10/4/2008 12:39 PM (GMT -7)   
Hello, I went to the eye Dr with several eye ball pain and couldn't hardley see. It was iritis, he said it was due to my CD. B4 I told him I had CD he ask if I had RA or some other aoto immune disease that would cause this. KC

 I Love MY Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa and now Entocort.    

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 10/4/2008 8:28 PM (GMT -7)   
Well just tonight my eye was itching like mad, and of course I rubbed it like crazy. Only to have my upper eyelid swell up some Geez. It's happened before too. No idea if it's an allergy, or inflammation caused by Crohn's. Who knows. Nothing would surprise me!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 10/5/2008 10:33 AM (GMT -7)   

I have had both Episcleritis and Scleritis of the eye.  Even when my stomach issues seem to be ok, the eyes are not.  I went see an eye specialist who deals specifically with auto-immune eye diseases and I am hoping, and praying, that he is able to help me out soon!



Regular Member

Date Joined Nov 2007
Total Posts : 83
   Posted 10/6/2008 12:12 PM (GMT -7)   
My left eye likes to be inflamed - which means the cornea swells and makes everything blurry. Lately its been better, wearing contacts less and glasses more (sigh) had eye drops and goopy stuff for when i sleep, it would help temporarily. now i just use drops to keep it wet and it seems to be ok - eye doctors cost a lot! on top of all these other appts and tests..

I didn't tell her I had Crohn's - she thinks it's from the contact solution, so now I use daily contacts.
25 yrs - female : diagnosed with Crohn's 11/29/07

"i believe - you can keep going long after you can't"

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