I am new to the forum, but have been browsing over the threads, and am overwhelmed with the information on here.
My little brother was diagnosed with Crohns about 5 years ago (he is now 27) after wasting away to almost nothing, and almost dying. He has been on prednisone pretty much constantly since, with a few months he was able to be off of it. He has been on and off Remicaid as well. He lost his health insurance, and went for along time with no treatments, care, etc. He has found a Dr. that helped him get on the Remicaid program that provides free Remicaid, but he pays $500 for the infusion. He has had a fissure from his colon to his bladder for almost 5 months now. He was given Remicaid 4 weeks ago, and was due for it again, when he was hospitalized with severe limb/joint/muscle pain, not being able to move, etc. After a week in the hospital, going thru joint swelling and high temperature, heavy antibiotics for an apparent bladder infection, he was feeling better and released. He was scheduled for another Remicaid treatment today, and 5 minutes into the infusion, his throat swelled, he turned red, and they stopped the infusion and gave him a shot of Benadryl and oxygen, and he was ok in an hour or so. He said that they did not give him Benadryl before the infusion as they usually have in the past. He has an appt. with his GI Dr. on Monday.
My questions are: is is standard procedure to give Benadryl before Remicaid? I have read a few posts on here that mention they have taken it first also.
Does anyone know of any health insurance thru the state of FL, or IL that would help him cover his costs, and get the "good" medical care he needs?
Is it possible to get on disability for Crohn's? He has lost SO much work, and is only employed now because he works for our brother.
Any and all other info anyone can offer would be so appreciated. He is currently in FL living with my brother, but I am trying to get him to IL so I can help with his care as he is depressed on top of all this. Thank you all so much for this wonderful forum. I will certainly keep reading thru posts.