Just curious about everyone here =)

New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 10/11/2008 9:42 PM (GMT -7)   
So Ive been around on this site for about 3-4 months now, since my last huge flare up...And Im sitting here tonight bored, and it got me wondering about things, like how old everyone is here, when were you dx'ed, what do you do for a living (stressful job?, do you think it effects your crohns?), and if you think your Crohns as gotten better or worse with age...
I'll start I guess lol
-I'm 21 yrs old, I was dx'ed when I was 16
-I work in a candy store, making truffles, fudge, caramels ect...
-My job itself is not stressful I actually love it and have a blast at work (and I can eat chocolate all day, what more could a girl ask for haha), but around the Holidays when we get very busy I def notice that my stomach starts to act up.
-Im fairly new to this disease I guess, and Ive only had 2 serious flare ups, the first is when I was actually diagnosed with Crohns, the second was about 4 months ago which lead to my 2nd surgery, but Id have to say the first flare up was by far worse then the second...so for me in the 5 years that Ive had this disease it hasnt gotten any worse then when I first found out I had it.
Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Humira (bi-weekly), 50mg Pred, Levbid, Nexium, B12 injections.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 10/11/2008 10:00 PM (GMT -7)   
I'm 20, diagnosed at 19. I attend school full time so I don't work at the moment, but I am trying to find some sort of odd job that can somehow fit in with my school schedule--very scattered...

School itself has been stressful but doesn't seem to have made things worse. In fact, I'm feeling better than I did all summer, and I can eat a lot more than before.

I suppose I can't really answer the age question :)
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone(down to 10 mg), pentasa, bentyl as needed, prilosec, tandem plus, humira, and good probiotics
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.

Regular Member

Date Joined Dec 2007
Total Posts : 29
   Posted 10/12/2008 6:12 AM (GMT -7)   
I am 26 years old

I was diagnosed 2.5 years ago though I had been having signs of Crohn's Disease for years before hand

I am a commercial interior designer and while at times my work is stressful, my bosses are really great and understanding.

For the last two+ years my doctors have been trying to get me in to remission with medicine and so far nothing has really stuck so I would say that I do not have nearly as many flares as I was having, but I have not seen a huge improvement.
Diagnosed with Crohn's Disease at ileum 2.5 years ago.
Currently on: Prednisone & Pentasa

Regular Member

Date Joined Nov 2007
Total Posts : 83
   Posted 10/12/2008 1:15 PM (GMT -7)   
I am 25 years old, diagnosed last November.

I've always had a sensitive stomach and been rather gassy! ever since I was a baby (says my mom). I started having severe pain and problems summer 2003 but doctors said - everything was fine. But got incredibly bad winter 2006 but didn't find a doctor who would listen until winter 2007. I was put on 6mp but developed hives and stopped taking any medicine. In denial I thought I could take care of it myself, but it seems stress gets me down. This July I flared again and finally accepted my doctors care and medication. I've been improving since then and slowly actually gaining weight! - coming to terms with my denial as well.

I work full time at a help desk for a printing company and go to school part time for my masters. Desperately need a new job. My boss pretends to understand, but when I feel my worst and want to go home, he refuses.

I'm glad to have this site and the people to get me through each day <3
25 yrs - female : diagnosed with Crohn's 11/29/07

"i believe - you can keep going long after you can't"

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 10/12/2008 5:09 PM (GMT -7)   
I am 46, I was diagnosed with initially with Proctitis, a "Milder" form of Uc, which then became full-blown UC. about 1.5 years later, in 1993 the dx became CD. But I had symptoms off and on since I was 17.


Regular Member

Date Joined Oct 2007
Total Posts : 294
   Posted 10/12/2008 5:11 PM (GMT -7)   
28 diagnosed at 14...Crohns

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 10/12/2008 6:27 PM (GMT -7)   
27, diagnosed 22/23, was sick since age 13. Criminal justice undergrad, worked in probation and corrections, now a full time law student looking for permanent work. Work part time at a firm and at a legal aid clinic for school credit. When I let myself get stressed my gut does act up. I am working on changing how my body reacts to stress.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 10/12/2008 6:41 PM (GMT -7)   
Hi Melissa I am Over 50 and had CD long enough but guess it is something to get used too.I sure like the sounds of your job got to admit I'am a sweet lover. I was DX with severe CD a few years back and it has been busy years for me. I spend alot of time here and really like and care for the others that take the time to be here. I enjoy helping others as well and all the good info and mostly just being apart of and relating to something that is a part of our lives. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/12/2008 6:53 PM (GMT -7)   
I am 29 (+1...lol) a PhD student in MFT. Former Navy Surface Warfare Officer and a LEO before that. DX at 26, symtoms for about 3 years before that, I thought I was just getting the flu alot. Been in a constant flare since before dx. But down from 30+ a day to 12-15 BM's a day with MTX.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 10/12/2008 8:26 PM (GMT -7)   
Hi Melissa, I'm another one over 50. Been DX for a long time now. I'm suffering with a lot of spin off diseases as well.
I get tired if this DD never letting go!!

I don't work, although I baby sit my grandson a lot, so I guess I do work, but at least in my work place my bathroom is very handy!!

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts

Regular Member

Date Joined Sep 2008
Total Posts : 150
   Posted 10/12/2008 8:40 PM (GMT -7)   
Hi there,
Im 30, a mom of a five year old girl, I live in Perth Ontario, and currently being tested for crohns,
have had a upset stomach for as long as I can remember, with lots of constipation up until I had my daughter, and i did not have a vaginal birth, however, my which at the time, was ibs, according to the doctor, kind of just went away for almost 2 years, and now its real bad, i am not constipated however, i go to the washroom several times a day, I have had draining discharge for as long as I can remember,
I sure hope they soon find out whats wrong, before I lose more weight,
thanks again,
30 year old female, currently being diagnosed with a possible crohns, or celiacs disease. Have lost 40 pounds, cant eat very much, distended abdomen, low b12, constant diarrhea, diagnosed with fibromyalgia in 2006, also have PTSD, and have suffered from depression and bipolar episodes since being a teen.

Regular Member

Date Joined Oct 2007
Total Posts : 149
   Posted 10/12/2008 9:05 PM (GMT -7)   
Hi i'm 46 was told i had Crohn's at 33 I'm currently employed at Staples "That was Easy" LOL!!! had to say that. I pretty much do everything there most of the time in the computer section. Sometimes i'm do some tech work there. The people that work there are great. Sometimes it can get stressful there with angry costumers other then that the jobs ok. Its been a rough ride over the years with this disease but i still kicking.
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
B12 Injections

Post Edited (Erik45) : 10/12/2008 10:16:43 PM (GMT-6)

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 10/12/2008 9:16 PM (GMT -7)   

I'm 33, and was diagnosed with Crohn's when I was 21. I had been sick for at least a couple of years prior. Since then, I've been in and out of college, depending on the Crohn's (and anxiety disorder). Then I got Valley Fever when I was on prednisone (it lowered my immune system to let it get a hold of me), and a year later I had to have my gallbladder removed, and haven't ever made it back to school. So right now, I live with my parents...in a retirement community. Fun times! I dog sit for old people when my health is decent, and my thumbs are in excellent condition from extensive video game training (my XBL Gamertag is spookyhurst if you're interested in playing some games).

My dad is 62, and has had Crohn's since he was around 21 or so. He's no worse today than he was when I was a kid. In fact, I think he had a lot more problems with it when he was younger. While I end up in the hospital at least once a year, he hasn't been hospitalized since I was maybe 10 years old. So that's hopeful!

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 10/12/2008 9:41 PM (GMT -7)   

 Hello Melissa,

     I'm 50, Mom to 4 grown children, and many Grandchildren. I had symptoms from about 7years old and had 6 miscarrages that I now blame on the Crohn's. I was hospitalized in 1990 with Hydronephrosis, and told I had an unspecfied autoimmune disorder, after 9 days and 19 bags of  various antibiotics. I displayed many different symptoms over the next 12years including hives, swelling of joints, a few GI symptoms(not many)but mostly depression (never experenced before 1995), memory loss,serious, fatigue, arthritic and muscle pain. I could not comprend what I read, after teaching myself to read at about 3 years old. In 1995 I resigned a  high stress job that I dearly loved, because I felt to weak and venerable to perform my duties.In 2002 within 6 months after Sharon Osborne went public with her Colon Cancer on the reality show, one hospital where I live had 15,000 women between the age of 35-50 years old request Colon scopes, they were all self pay as insurance only covered the scopes for people over 50 at that time, and of those about a third were DX'd with Crohn's, Celiac, or UC. I just happened to chose a OB/GYN who was on staff there to do my female maintainance. She DX'd me on the spot, and sent me for a scope to confirm. It was the best thing to happen for me in a long time. I now work in the natural products industry, a good idea for me so I can afford the SCD diet I use for control.Sometimes it is stressful. I talk to  people every day who have major illnesses, some the Doctors have given up on, but it must be my calling, when I get home I come here and do more of the same. I remember what it is like to have the Doctors shrug and say "we just don't know", and how wonderful it was to find a forum like this one where people knew what it was like to suffer before things presented well enough for the Doctors to piece it together and help me.      

                                                        turn tongue turn

Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

Veteran Member

Date Joined Dec 2006
Total Posts : 517
   Posted 10/12/2008 10:58 PM (GMT -7)   
I'm not actually a Crohnie, but I read this forum, as well as the UC forum.  I've had UC for a couple of years. If this bounces me out of the discussion, I understand. I think I first noticed symptoms when I graduated from college the first time in 1999. My chosen profession ended up being more stressful than I ever would have thought, and I began to show symptoms after a couple of years. Nothing that really alarmed me. Then I returned to school to learn a trade that would help me to pay of my student loans. Six years after my first graduation, I got a c diff infection during the last quarter of my trade school, almost didn't graduate. They did a c-scope, and found the UC. I've been trying to incorporate this illness into my life since. Mesalamine keeps me in remission, but it causes allergic reactions that almost makes it untolerable. Prednisone really helps, but I hate the stuff.

36 y.o. male
Diagnosed w/ moderate UC in May '06
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort enema, Prednisone (trying to taper down)

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/12/2008 11:07 PM (GMT -7)   
I'm 41 and got sick and fairly easily DX at 24yrs of age, I've been flaring to some degree (mostly severe to moderate) for my entire 17 yrs of having this DD because of complications with my perianal crohn's skin tags...my disease actually started with perianal crohn's skin tags which I noticed in my late teen yrs around 17-18 yrs of age but with absolutely no other symptoms, just these stupid bumps (which I was told were hemheroides) which would come and then quickly go, there was also the one time when I was 19 that my lower lip swelled up like a balloon, I thought it was just a blister cuz I'd gotten them from time to time like most people but instead of just a blister which is what it looked like it was starting out as, my entire bottom lip swelled up, other than those episodes in my teens I had no bm, frequency or any other issues that were CD related.

Since I didn't get sick until my first baby was about a yr and a half old I was already a stay at home mom, getting sick just ensured that's what I'd remain, I have 2 gorgeous kids, one boy (16 yrs old come march) and one girl (19 yrs old come January) and they are fantastic and I love them to death, I've got a pretty good hubby too, we've actually been together since I was 15, married for 19 yrs this yr, pretty much together for 26 yrs (minus one yr, which I call my relaxing break LOL).

I find my disease to be too random to say it gets better with age, besides which, researchers have already discovered a cluster of 9 different genes that contribute to the severity and behavior of the disease for each person, so there's no guarantees one way or the other if it gets better or worse as you age because it's different for each persons genetic make up.

My mom also has an IBD, she has UC which she got sick with a few yrs after I got sick with CD, which is weird...when I got DX it was like she was banging her head trying to figure out how I could get such a thing, then whamo, she gets UC a few yrs later in her mid 60's...IBD is definitely a strange disease.

Stress has it's place with IBD as well, yrs ago (around 16ish yrs) I had a colon and rectom surgeon tell me to try and keep my life as stress free as possible. Some people's IBD may be more affected by stress than others with IBD but in general it's always good to try and not sweat the small stuff, the less things you let get to you the better for your health overall.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Mar 2006
Total Posts : 2739
   Posted 10/12/2008 11:50 PM (GMT -7)   
I'm 30 years old, will be 31 next month. I started having symptoms of Crohn's at 19 or so. Wasn't diagnosed until 2006 however, when I was 29! I'm a SAHM, and I also homeschool our son who is 10. That keeps me busy! :) When I was diagnosed I was working in a super busy doctors office as a PBX Operator. It was quite stressful, and I flared big time while there. Since being home again I feel I'm able to keep my stress down better, and take better care of my health.

I feel my Crohn's has gotten worse with age unfortunately. My flares seem to be worse, and come with new complications that I've never had before. I'm hoping that calms down, but it's one of those things we never know!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Taking Asacol, Questran, Toprol XL (for high blood pressure). Tapered off prednisone a month ago!

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 10/13/2008 12:46 AM (GMT -7)   
im 21 got dx when i was 20,

im currently unemployed
dx 17 aug 2007
21 yrs old
13 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

Regular Member

Date Joined Apr 2007
Total Posts : 254
   Posted 10/13/2008 6:12 AM (GMT -7)   

I'm 34 years old, suffered with symptoms since 1999, was officially diagnosed 2006 when a partial obstruction landed me in the hospital.  I am working full time for an insurance company in Greece, and I am a mother of two girls aged 8 and 12.  I guess my job keeps me balanced, I don't think I could sit home all day, that would make me really depressed....  although I believe I have a mild case of Crohns, 1-2 bm's in the good days, 5-6 bm's in the really bad days


Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 10/13/2008 6:43 AM (GMT -7)   
I am 51 and have lived with this DD for 33 years (this month). I was diagnosed in 3 weeks when I was 18 years old. I work in the Financial industry and really don't have too many stress problems from my job. I am a mother of 3 grown daughters and 5 grandbabies. The grown daughters give me more stress than anything. And I am extremely, happily married.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Regular Member

Date Joined Feb 2004
Total Posts : 437
   Posted 10/13/2008 7:05 AM (GMT -7)   
I'm 32 was dxed when I was 24 in the ER and had a resection 1 week later. It came back and I was working as a Graphics Design Supervisor at a Newspaper and it was very stressful. I realized that after a year I had only actually was in the office for like 2 months because I was in and out of the hospital. So, I needed to find something less stressful and less dependent on me to be there. I moved to a small town and got married, got a stress free job at a Printing company. Went into remission thanks to Remicade. (had to stop it tho because of reactions) Was in remission for 4 years when I had 2 beautiful boys.

I got a new job as a Graphic Artist for a housewares company earlier this year and now my CD is back again. Been flaring every 2 weeks and have a CT scheduled at the end of the month and I will be starting Tysabri before long. Stress plays a huge part in my CD and having 2 small kids and a new job tends to mess with things a bit.
Well..that's my story in a nutshell.

Regular Member

Date Joined Aug 2008
Total Posts : 467
   Posted 10/13/2008 8:23 AM (GMT -7)   

I too have been here a short time. Thanks for starting this great string!

Everyone else,

It's wonderful to meet you!
Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 10/13/2008 8:44 AM (GMT -7)   
Lets see, I'm about as old as dirt. I live in the swamp lands at the bottom of the earth. The place where you see all the hurricanes hit. I started with symptoms when I was a teen. Doctors called it, nervous stomach. Thats code for , we dont have a @#%$ clue. I more or less learned to live with the pain. When I turned 18 Uncle Sam made me an offer I could not refuse and I got an all expenses paid vacation to a place call Viet Nam. I spent almost 5 years there. Very stressful place too, but pain was a daily thing there and if I crapped my pants no one cared. I came home with another gift. Post traumatic stress disorder (PTSD) . Old Uncle Sam didn't treat that at the time so I got to deal with that on my own too. I worked 31 years for the phone company. Another stressful place. A year before I had enough time to retire I became very ill. about 100 tests and months later I was DX with crohns. My wonderful company gave me a choice of retiring or being fired. Hmmmm, a no brainer. Yes I would say that stress plays a big roll in CD management. Ive been retired long enough to see that I am doing much better with less stress, although old Uncle Sam still is trying to do me in with stupidity..So far meds and mind over matter have prevailed in CD control but I cant speak for sanity.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Oct 2006
Total Posts : 109
   Posted 10/13/2008 9:16 AM (GMT -7)   
I'm 44 (soon 45), had symptoms since '93 but dx with crohns colitis in '02. I chose to ignore the symptoms as flares would come and go through those years. Finally in '02 it got bad enough to see a specialist. Had a colonoscopy which dx the crohns colitis, a few days after the scope things got real bad, they tried everything to control the bleeding but ended up in emergency surgery xmas eve '02 where they removed my large intestine. Now have an ileostomy and scheduled to get rectum removed this fall/winter. I've felt great since surgery with no flares or problems since.
I think stress does definately play a big roll in flares. In '93 when I got my first nasty flare I was under a lot of stress due to the husband's drinking and his party friends invading and trying to destroy our life. It wasn't a pleasant time and I do blame all of that to how I ended up.

Regular Member

Date Joined Nov 2004
Total Posts : 158
   Posted 10/13/2008 11:23 AM (GMT -7)   
I am 34 and was diagnosed with crohns when I was 28 about 5 weeks after the birth of my first son.

I have gone from full time to part time to now relief status, working as an Exercise Physiologist/Personal Trainer for a small hospital. I currently work 5 hours a week and am home with 4 small children the rest of the week.

I have had horrible flare ups after the birth of all my children and again when I start to ween them from breastfeeding. I am being foolish and praying that now that I am done having children that maybe I won't flare as much or as bad. Wishful thinking, I know.

So far my crohns has only been in the large intestine up to where the large meets the small! I do get joint pain, mouth sores, and weird skin inflammation as well.

I would say that I handle this disease very well and have wonderful support from family and friends. I have also had awesome support at work where employees have actually donated their paid time off when I was too sick to come to work. I always tell myself I will not die from this. But some days it really does bring me down. I used to love long distance running and have had to give that up. But I still run up to 3 miles when my stomach can handle it. I must say that I thank God that I was diagnosed later rather than when I was in high school or college. I really admire those of you that take on school and this disease! I feel you should be really proud of yourself.

Well I think there is a bee flying around in my computer room so I am outta here!
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.

New Topic Post Reply Printable Version
39 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, January 20, 2018 3:49 AM (GMT -7)
There are a total of 2,919,131 posts in 320,309 threads.
View Active Threads

Who's Online
This forum has 159370 registered members. Please welcome our newest member, Sara Angelou.
274 Guest(s), 0 Registered Member(s) are currently online.  Details